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Achalasia

Hi
MS 39 years, SPMS. Just diagnosed in December, 2025 with Achalasia . A very bad exacerbation in February, 2025, brought it on. Anyone else?

Lisa

  1. Hi, (Lisa)!

    I know you shared about your new diagnosis a few months back and you are still the only member of this particular online community that has written here about this diagnosis! I wish I could connect you with someone else familiar with Achalasia! I assume you have been doing your own research on Achalasia. I know one theory is that Achalasia may be its own autoimmune condition. And, you probably already know that once you are diagnosed with one autoimmune condition, your likelihood of being diagnosed with another goes up. I would if Achalasia will eventually be classified as a distinct autoimmune condition or more of a tag-a-long comorbidity, like Sjogren's, uveitis, hyperlipidemia, etc).


    I guess my comment here is not very helpful, but I wanted to let you know that I read your post and I am interested to know how you are doing with this latest diagnosis. Have you been able to keep up your exercise routine and healthy lifestyle fairly well?

    Best, Erin, Team Member.

    1. thank you Erin. Yes, I may miss a day but no matter legacy appointment I have to schedule around , I do, my gym 👍. Great news though! I have an appointment next Friday, June 19@ Advent Health Achalasia Team in Tampa . No more testing is needed, so I'm going to tell them I want the POEM surgery in July. I'll keep posted

  2. Hi FitChick, I've never heard of this term before, but now that I've looked it up, I'm so sorry that you suffer from it. I'm not sure that I understand how or if it's different from difficulty swallowing in general--is it a matter of severity? For example, I sometimes get spasms in the muscles involved in swallowing that give me trouble eating and drinking, but not to the degree that prevents me from doing those things. It kind of feels like the description of the mechanism I've read, and I'm not sure if that is just a very mild case of the same thing, or if this condition is essentially diffferent.

    (As an aside, after reading the description of this condition, I wonder if the chest pains that I have are at all related to my difficulty in swallowing, since they've found no other cause for them.)

    1. OMG yes!! The chest pains near esophagus are the worst. ♥️🙏🏼

  3. Achalasia

  4. I will pray that you don't have it. But you need to tell your neurologist, primary so they can refer you to gastroenterology

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