August 7, 2017
I have this burning, tingling feeling "inside" my whole upper body...stomach area on up, arms. Has anyone ever experienced this?
August 8, 2017
Hi daisymom! Thanks for being part of the community and sharing your question. What you're describing sounds like it could be neuropathy. Members of the community will surely weigh in to share their personal experiences, but I wanted to share this comprehensive artcle from John Hopkins that talks about the various types and how they may present.
I hope this helps! -Warmly, Donna (MultipleSclerosis.net team)
September 10, 2017
Hi Daisymom~I've had a recent development in the past months and that's going to bed, once I'm tucked up, my feet feel like they've been set on FIRE!!! Not a dang thing I can do but get my feet out of the covers and wait it out. My left knee will burn, or feel like fireworks are going off inside it! Within the past year, the moment I'm conscious it feels as if someone is shaking my bed. It's me! Everything inside my body feels as if it's being shaken-not like being really nervous or a 'speedy' feeling you might get from a medication-it's bizarre. Sometimes I think it's as if I'm plugged into something! It's so intensely obvious, it seems as if someone should be able to touch me a feel it too. Nope.
I've had 4 back surgeries, & after every one there's been a spot on my body that feels on fire-bcuz there's nerves that have been set free! Soon as I let them know, I've been given neurontin (gabapentin) Lifesaver! FYI it's also effective for hot flashes! Hope you can tell your doc soon and get something underway to help!
August 11, 2017
I have had tremendous amounts of intolerable nerve pain in all of my limbs , feet and hands
About 18 years ago it was so bad I did not think I could live another day. After a lot of trial and error
Of meds with a well known pain physician What works amazing is a lidocaine drip which is IV
lidocaine It usually last about 3 months for pain relief with the exception of my feet burning.
I hope you get relief plz before you reach the point of despair as I did years ago when my children were all small. It iIs nothing to mess with as it comes on and intensifies very quickly but also with treatment can leave just as fast
Best of luck. I’ll be thinking of you so plz let me know how it’s goinf
August 12, 2017