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Has anyone experienced a burning, tingling feeling inside their upper body?

I have this burning, tingling feeling "inside" my whole upper body...stomach area on up, arms. Has anyone ever experienced this?

  1. Hi daisymom! Thanks for being part of the community and sharing your question. What you're describing sounds like it could be neuropathy. Members of the community will surely weigh in to share their personal experiences, but I wanted to share this comprehensive artcle from John Hopkins that talks about the various types and how they may present.

    I hope this helps! -Warmly, Donna (MultipleSclerosis.net team)

    1. Hi Daisymom~I've had a recent development in the past months and that's going to bed, once I'm tucked up, my feet feel like they've been set on FIRE!!! Not a dang thing I can do but get my feet out of the covers and wait it out. My left knee will burn, or feel like fireworks are going off inside it! Within the past year, the moment I'm conscious it feels as if someone is shaking my bed. It's me! Everything inside my body feels as if it's being shaken-not like being really nervous or a 'speedy' feeling you might get from a medication-it's bizarre. Sometimes I think it's as if I'm plugged into something! It's so intensely obvious, it seems as if someone should be able to touch me a feel it too. Nope.
      I've had 4 back surgeries, & after every one there's been a spot on my body that feels on fire-bcuz there's nerves that have been set free! Soon as I let them know, I've been given neurontin (gabapentin). Lifesaver! FYI it's also effective for hot flashes! Hope you can tell your doc soon and get something underway to help!

  2. Hi Daisymom
    I have had tremendous amounts of intolerable nerve pain in all of my limbs , feet and hands
    About 18 years ago it was so bad I did not think I could live another day. After a lot of trial and error
    Of meds with a well known pain physician What works amazing is a lidocaine drip which is IV
    lidocaine It usually last about 3 months for pain relief with the exception of my feet burning.
    I hope you get relief plz before you reach the point of despair as I did years ago when my children were all small. It iIs nothing to mess with as it comes on and intensifies very quickly but also with treatment can leave just as fast
    Best of luck. I’ll be thinking of you so plz let me know how it’s goinf
    Love
    Lisa Cal

    1. Thank you!

  3. So, @daisymom, I am seeing this more than 4 years after your initial post as I have only recently joined this group. I have been looking to see if anyone mentions what I am feeling and yours is the closest description so far. I too, have been experiencing a tingling feeling under my skin through most of my lower torso and arms. Not painful but some of the "waves" get a bit uncomfortable. They seem to ebb and flow mostly while I am at my desk at work. If I am moving I do not notice them. I do not know if this is an MS symptom or if I have another incidental issue as I have lots of those too. Have your sensations changed since this post? I mentioned it to my neurologist and he just told me to monitor these and report back if they get worse or are too uncomfortable. Or, and more likely, is this just part of my new normal?

    1. Hi ! Welcome to the community! I am so glad you found us. Please feel free to reach out if you need anything as you explore the community. Here is an article about paresthesias, which might be what you are experiencing: https://multiplesclerosis.net/symptoms/numbness-tingling. Some people treat it. Others prefer dealing with the discomfort over the side effects of medication. It often comes on as part of a flare and resolves over time. That might be why your doctor suggested waiting. I hope this helps and that you get some relief soon. Best wishes! - Lori (Team Member)

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