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Coping

I have Secondary MS. I started years ago with my eyes. I slowly went away now I can not walk well unless I truncheons walls in my house and when I go out I need my walker and sometimes my wheelchair. Has anyone shave similar story and how do you cope with it?
Me just sitting at my desk which How I spend most of my day

  1. Hi, !

    I know many of our members struggle with balance issues and having to hold on to walls around the house or using walking aids to get about safely. I do hope some of them see your post and comment with their tips and tricks for walking safely and coping with the changes MS can bring.

    I wanted to share a couple of pieces from our health leaders on this topic. wrote about his experience using mobility aids when going out -- https://multiplesclerosis.net/living-with-ms/movement-fears. Also, one of our former health leaders wrote pretty frequently about his changing mobility and here is just one of his pieces (check out the many comments following his article to get some idea of what our community members had to say about their issues with mobility) -- https://multiplesclerosis.net/living-with-ms/stability-issues. I don't know if you're wanting tips for minimizing your fall risk, but I did want to share some information, just to cover the bases -- https://multiplesclerosis.net/living-with-ms/minimizing-fall-risk. I hope some of this information was helpful for you and I am glad you reached out here. It's hard to be able to predict your needs each day, like, will you need a walker or will you be fine walking? Will your legs give out halfway through your day or not? I think maybe tracking your mobility through out the day and noting the changes can be helpful. As in, do you get less stable as the day goes on? Do you experience more leg weakness when it's hot? Cold? All that information can be helpful to make note of.


    Best, Erin, Team Member.

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