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Do you know many other people with MS?

You've probably heard the old expression "you don't get MS until you get MS". Meaning that you really can't understand what life is like with the disease until you experience it firsthand. I know that once I was diagnosed, I became interested in making contact with other people who lived with MS. I think that's one reason that folks get excited when a celebrity comes out as having MS, it's one more person who you know "gets it". You're not excited that they have the disease but you are certainly excited to know someone else understands.

I have a handful of good friends that I've met (mostly virtually) because of my disease, people I wouldn't otherwise have had the opportunity to meet. So do you know many people that you talk to regularly who have MS? Let's hear about it!

  1. Hello Devin..yes I actually have one person that I am close with . We met on a MS support group site when I was first diagnosed 5 years ago. She lives down the street which I am so fortunate. She has been my " MS buddy". It helps that we can share stories .. everyone with MS is different. I guess that is why they call it the "snowflake disease". She is helping me thru a difficult time right now and it's help because she knows exactly what I am dealing with. I totally appreciate the MS community that I have grown to know and reach out to people like yourself.

    1. Hi . How awesome that you found someone so physically close with MS and that the two of you click as well. I hope she is able to help you through your current issues. Remember that we are here for you also if you need us. Best wishes. - Lori (Team Member)

    2. I'm so glad you have someone ! I have friends who have different symptoms than me too, but it is still pretty comforting for me.

  2. I'm so fortunate to have the MS Center Of SWFL in my area. They offer virtual and in person yoga, exercise, group & individual therapy as well as art classes. Through these activities I've met others that live near by who also have MS. When considering a new DMT I reached out to MS groups with international reach on social media for in put and that helped a lot.

    1. Wow! How awesome, ! I wish there were centers like that everywhere. Thanks for chiming in. - Lori (Team Member)

    2. Wow, that sounds great ! I am definitely jealous!

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