Do you tell people you may have MS

No the neurologist wanted me to have this first. He really has been very good. At first he thought that the white spots from the first MRI might be a symptom of high blood pressure or cholesterol so I had to have 7 Large vials of blood done. Luckily (or not), my blood work was perfect. Then I got the brain and spine MRI done and after he saw lesions in that one as well, he said it possibly is MS. I was hoping that maybe if its my vestibular then its not MS but then I looked it up and it said a percentage of MS suffers battle with vertigo. Mine is so bad! Just dawned on me that he didn't say what else it could be.

Hi . Unfortunately, vertigo is common for people with MS, but it is common to a lot of other illnesses as well. It does sound like your doctor is leaning toward MS, but fingers crossed that it is something even more manageable. Regardless, it seems you are in good hands with this neurologist. I hope you are able to put some of this out of your mind for a bit and enjoy the weekend. Warmest of wishes. - Lori (Team Member)

Thanks for joining us, and bless your brother! It really h elps to have someone in the process with you, because the diagnostic process with MS can take so long and it's so nervewracking! I had my first symptoms in 1978, and it took three years before I had my diagnosis. Forty five years later it can still take three years to rule everything out and come to a diagnosis! I will say that once I found out it was MS, I felt great relief. And now that there is such a wide range of treatments to choose from, finding out the diagnosis and getting started on a therapy is more than a relief, it can be hope as well! Believe it or not, it took me 22 years to get started on a therapy, and I'm still on the one I started with . With MS, ANYTHING is possible. I just hope that you stick with us, and keep us posted on how your'e doing, and read the articles and get to know the moderators and the writers and the various advocates we have in this community. Even if you don't end up with MS but something else, you will always be welcome here. Take care, take a couple of deep breaths, and settle in. You may get a diagnosis quickly, or it may take some time. But you are NOT alone -- we've all been through the diagnostic process -- and you're either not crazy or we ALL are!


best wishes, in solidarity, Therry, a Team Member

Thanx Therry! I just hope to know what it is so I can deal with it. I suppose my first symptom was feeling so exhausted in my 20s but maybe it was just because life is so hectic! At least thats what I told myself. Then I kept losing my balance and fell through the shower door, much to my toddler's horror! Even then, despite falling lots and feeling numbness in my left arm and hand; I convinced myself it was something else. Like carpal tunnel, and it wasn't. Last year, i really battled with vertigo and now the numbness is on both sides. Awful. I have terrible icy headaches that drive me nuts! Honestly, I thought my brain was dying!