Don't know what to do - just want this to end

My heart goes out to you, . I don't think anyone here will try to spin some positive angle to living with PPMS. You don't need that kind of toxic positivity, do you?

MS is often a tough, tough condition to live with and PPMS even more so.

I don't have any great advice, but I want to let you know that we do have members here with PPMS. One of our former health leaders often wrote about his experience with PPMS and you might find his words useful -- https://multiplesclerosis.net/living-with-ms/rare-primary-progressive. One of our former health leaders, Mike, still pops up on this site and he also shares pretty openly about his diagnosis -- https://multiplesclerosis.net/living-with-ms/ppms-difference. Listen. I don't have PPMS. I am not even going to pretend to understand what it's like for you. But. What I do know is that you are not alone here. We have members who know the challenges of life with PPMS.

Also, while DMTs might not work for you, there are ways to make your life more managable, from good accessability aids (wheelchairs, etc) to other medications to manage MS symptoms. I don't know what your doctor has suggested, so apologies if I am off the mark here.

Also, if you haven't checked out the NMSS -- https://www.nationalmssociety.org/ and the MSAA -- https://mymsaa.org/, you may want to. They are geared towards more common forms of MS, but both communities do have some pretty great resources.

Thank you for reaching out and I do hope you keep sharing here!

Best, Erin, Team Member.