Seven years ago I got very sick and MS was suspected (I had fatigue, foot drop, tremors, lots of muscle skeleton pain, very exaggerated refluxes.)
MRIs on brain and spine were negative. Was diagnosed with fibromyalgia. Two years later I tested positive for Lyme Disease, was treated for several months, quit a stressful career and started feeling better.
Fast forward to this winter and symptoms have reoccurred. I’ve had more muscle spasms to the point where my calf will cramp up for a few days making it very uncomfortable to walk.
I’ve also had vision changes and learned I have enlarged optic nerves and have glaucoma in my left eye with some nerve damage. I’ve had some changes in my bladder control— to the point where I have lost total control on a couple of occasions.
My doctor had long suspected that I’ve had MS and has ordered another set of MRIs. I am dreading what they will cost.
My blood work showed an elevated CRP and my platelet level has always been higher than normal— my doctor says this may also be an MS indication.
I must say that I function pretty well aside from pain and muscle issues. Exercise helps a lot!
If they do find lesions and diagnose me— would it likely be Relapsing MS? What is the treatment regiment for this type?
I have four kids and lots of expenses and am hoping the MRI is clean. On the other hand— if it’s not MS— what else is it?
I am tired of this space of not knowing and don’t want to throw money at tests that won’t give me a diagnosis.
Thanks for any input you can offer!