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Hunger

Has anyone forgotten to eat? This happens to me alot...I was dxed after I gave birth at 39..Prior I had optic neuritis at 19 which resolved and frequent numbness but was able to work until I gave birth..ALWAYS had depression and was on different anxiety med...on and off copaxone...Was involved with my parents these past 25 years..they helped me then I helped them until they died in last ten..NOW at 65 I relapsed, scary mentally losing focus significantly. Worried about dementia! And now I forget to eat!

  1. Hi . I wish you still had your parents at your side. I am so sorry for your loss. Are you living alone? Have you talked with your doctor about forgetting to eat? Cognitive issues are common with MS, so you are far from alone in that experience. Here is an article from one of our advocates about neuroplasticity, which can help the brain find new pathways for information: https://multiplesclerosis.net/living-with-ms/neuroplasticity-exercise-brain. Do you think you are really forgetting to eat or could it be that something has caused you to lose your appetite, which might make you forget? Loss of appetite can be an MS symptom, but it might also be caused by intestinal issues that are secondary to MS. Here is an article from another advocate who found an infection in her intestinal tract caused her loss of appetite and might have been a result of MS issues: https://multiplesclerosis.net/living-with-ms/importance-keeping-gut-healthy-mshttps://multiplesclerosis.net/living-with-ms/importance-keeping-gut-healthy-ms. The uncertainty of MS certainly can be frightening and overwhelming. I hope your symptoms improve as you recover from your relapse, but for now, it might be wise to tell your doctor what is happening. Maybe you can get a prescription for Home Health Care a few days a week so someone is at least making sure that you eat and stay healthy. Thinking of you and wishing you the best. - Lori (Team Member)

    1. Hi . Forgetting things-hunger and other things- can be due MS, age, anxiety... I've learned due to my own mother having dementia, that that forgetting to do things is actually a normal part of aging and many times not dementia. I'm 67 yrs old, and I forget many things, including eating. The way I look at it is, what can I do about it? Post-its are my best friend. I keep a routine as much as I can. I do things that are good for my brain function like reading, brain games, etc. Finally, there are many foods that maintain brain health that work to keep you focused. Maybe try the things, because not eating (or eating healthy) is just as bad as overeating the wrong things. Healthy eating is important to keeping the body's resistance up. Best wishes, Debbie (Team Meber)

      1. Agreed! I keep telling banking people dealing with my late mom's estate (luckily we created a trust). It's almost like in that movie, " Momento". And my records are boxes of papers with notes..If I start taking polaroids AND find the word KILL HIM, I will be in trouble. Started back on Copaxone, but all these companies want dates, etc...I am lucky if I can take care of my family! I know these drug companies have records and MS is a brain disease...WTF. And my hubby is still working and can't keep MY records!
        Last year was horrible because I relapsed, now this year I need to file taxes. Thanks for listening.

        1. I don't envy you, . We are dealing with my late-MIL's estate. She left very thorough instructions and a clear will and it is still a huge headache. And neither my husband nor I have MS (My father did.). I can't even imagine doing all that with cognitive issues and MS fatigue mixed in. I hope you will take your time filing taxes over the next two weeks so it doesn't become overwhelming and emotionally stressful. Sending lots of patience and loads of gentle hugs your way! - Lori (Team Member)

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