November 3, 2020
I started kesimpta injections, and I’m on my third week before I start monthly. Does anyone here use that treatment? What has it helped or not helped with? Cause I don’t feel much different. I just got diagnosed even though the first initial finding was around 7 years ago. Looking for relief and just trying to see what treatments are out there in case this one doesn’t work.
November 4, 2020
November 4, 2020
I knew that there may not be to many that have tried it’s apparently a newer. I’m so far I have had bad side effects except with the first dose I had some fever and some horrible muscle aches other than that the injections have been easy, as far as if it’s helping honestly I can’t tell a huge difference yet but like you said it could be just to early but I will definitely keep everyone updated on this medicine as I continue to start this journey to get or at least feel better. Thank you so much for replying. I am so glad to be a part of this group because it’s hard to always talk to the ones around you because sometimes it just can’t be described. Thanks again
November 5, 2020
I was/am part of the trial. Prior to this drug, I was on Copaxone and I didn’t like it. As far as side effects from the kasimpta I didn’t really have any except for a very small bought of shingles. I probably had 4-5 shingle bumps but I went to my doctor right away and got some medicine that cleared that up quick before it became a problem. I think I was one of the few who had shingles while on this med. I am 43 so shingles isn’t something that I think is typical for my age group. I have continued to take the drug it for over a year since the shingles and have not had any more issues with shingles. I have not had any other side effects from the medication. I have not had a relapse. I have not had any new lesions. Some symptoms seem to have improved. Occasionally prior to this drug I would get some tingling in the left side of my face for a few hours in the winter when it was really cold (I live outside of Chicago) but haven’t had that since taking the drug. I did not have any trouble with mobility before I took the drug and that hasn’t changed. I am lucky in my disease progression or lack there of. I feel like nothing is going to make everything go away and some symptoms could and do occur from time to time but I like this option for me. I would not change my drug choice. This is just my experience and I can’t speak for everyone. I don’t know anyone else on the drug personally but I believe the study didn’t show many side effects.
February 20, 2021
I took my very first dose about 1 hour ago. I don't know if this group is active, but there is NO information from actual patients out there - so what the heck. I was diagnosed almost 2 years ago. I took Rebif for about a year and a half, but was getting new lesions. I tried Tecfidera after that - I took it for 10 days and had to stop. I didn't tolerate it. I was wanting to do Ocrevus next, and my doctor told me about Kesimpta. The injection was easy and totally painless. No injection reaction yet. I did notice that some of my most common sensation related symptoms, and my muscle spasms started acting up shortly after the injection. We will see what happens. I didn't do anything to prepare for the injection except to eat a meal first.
February 20, 2021
Thanks for sharing your experience,