Does anyone here use Kesimpta?

Hi, ! I have to be honest and tell you that I do not have much knowledge about Kesimpta. Your experience with the treatment could be really helpful for this community! I know you were hoping for more information about the drug from people who have used or are using it and I do hope those individuals see your post and chime in! Do you feel like the treatment is working for you? I know it may be too early to tell. Again, apologies for not having more helpful insight for you thank you for reaching out! Best, Erin, MultipleSclerosis.net Team Member.

I knew that there may not be to many that have tried it’s apparently a newer. I’m so far I have had bad side effects except with the first dose I had some fever and some horrible muscle aches other than that the injections have been easy, as far as if it’s helping honestly I can’t tell a huge difference yet but like you said it could be just to early but I will definitely keep everyone updated on this medicine as I continue to start this journey to get or at least feel better. Thank you so much for replying. I am so glad to be a part of this group because it’s hard to always talk to the ones around you because sometimes it just can’t be described. Thanks again

I was/am part of the trial. Prior to this drug, I was on Copaxone and I didn’t like it. As far as side effects from the kasimpta I didn’t really have any except for a very small bought of shingles. I probably had 4-5 shingle bumps but I went to my doctor right away and got some medicine that cleared that up quick before it became a problem. I think I was one of the few who had shingles while on this med. I am 43 so shingles isn’t something that I think is typical for my age group. I have continued to take the drug it for over a year since the shingles and have not had any more issues with shingles. I have not had any other side effects from the medication. I have not had a relapse. I have not had any new lesions. Some symptoms seem to have improved. Occasionally prior to this drug I would get some tingling in the left side of my face for a few hours in the winter when it was really cold (I live outside of Chicago) but haven’t had that since taking the drug. I did not have any trouble with mobility before I took the drug and that hasn’t changed. I am lucky in my disease progression or lack there of. I feel like nothing is going to make everything go away and some symptoms could and do occur from time to time but I like this option for me. I would not change my drug choice. This is just my experience and I can’t speak for everyone. I don’t know anyone else on the drug personally but I believe the study didn’t show many side effects.

I took my very first dose about 1 hour ago. I don't know if this group is active, but there is NO information from actual patients out there - so what the heck. I was diagnosed almost 2 years ago. I took Rebif for about a year and a half, but was getting new lesions. I tried Tecfidera after that - I took it for 10 days and had to stop. I didn't tolerate it. I was wanting to do Ocrevus next, and my doctor told me about Kesimpta. The injection was easy and totally painless. No injection reaction yet. I did notice that some of my most common sensation related symptoms, and my muscle spasms started acting up shortly after the injection. We will see what happens. I didn't do anything to prepare for the injection except to eat a meal first.