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Long covid

I just listened to a story on NPR this morning about new findings about the effects of long covid for people with pre-existing health conditions, such as MS.And apparently not much is known about how long they can last, and or about any permanent effects. I had a negative test at the beginning of February, but I'm still struggling with increased fatigue, lassitude, and brain fog, and, frustratingly, insomnia/disrupted sleep patterns. With no objective measure it's hard to know how much strength and clarity I will get back. For now it is severely impacting my daily life, just to get out of bed to get through my daily basic routine. I'm wondering if anybody else here on this forum experiences anything like this.

  1. Hi , I've been somewhat following the discussions regarding long covid as well. It's definitely frightening to think of having that in addition to MS and suppering the consequences of what it can do to our MS. I feel there is still a ton they don't quite understand about long covid. That said, in my own opinion, many of the symptoms you've mentioned (and are often attributed to long covid) absolutely sound like they could MS symptoms. Especially if you tested negative for covid. Fatigue, lassitude, brain fog, and disturbed sleep patterns are all very common for MS. They are definitely things you should mention to your MS specialist because they have things that can help, things they can at least try. For example, fatigue and brain fog are challenges for me, so I take a medication (provigil) that helps (doesn't alleviate it but makes a noticeable difference). There are medications and even cognitive therapy that can be prescribed as well. But it's important to mention it so they can not only treat the symptoms, but to also make sure that your disease isn't progressing (they may want to do a new MRI) and that you don't need to switch your treatment. Best of luck and please report back if you talk to your doctor!

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