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MS Diagnosis Question

Has anyone been diagnosed with MS with lesions only in the subcortical and periventricular but not in (juxta)cortical or infratentorial regions?

Thanks in advance!

  1. Sam here! I’ve had MS for over 18 years. While I did have lesions in all the areas you mentioned, from what I know there are areas that are commonly affected by MS and where lesions are “typically” located, BUT MS and lesion location varies for everyone so not everyone has to have lesions in all the common locations. I would definitely ask your doctor for clarification though (if you haven’t already). 🧡 Sam, Team Member

    1. Sounds like a good plan! And, yes a general Neuro or one that specializes in MS is the way to go! Hope you can get more answers soon! 🧡

    2. Thank you!

  2. I'm in the same boat! I have 15 subcortical and periventricular lesions. My doctor brushes it off and says it's fine, but thankfully is still trying to get me in to see a neuro due to symptoms. Unfortunately the wait to see neuro is 1-2 years..
    I hope you have answers soon! Please update us!

    1. haha yep! Gotta love canada! My doctor referred me to gastrology a year ago and still haven't heard back from them, she referred me to a couple of other places but they tell her to refer me elsewhere. The first neuro she referred me to just flat out refused the referral. She referred me to an EMG clinic most recently trying to find something related that isn't going to take forever to be seen.

      My MRI, I believe said "up to 15 lesions". I can't get the document to load up properly to see exactly.

    2. 😱

  3. But don't worry, "it's fine" 😵‍💫

    1. 😩 Sorry!

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