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Need help

I don’t know where to go from here. Today I had another MRI and everything looked normal. I’m so frustrated because my symptoms say that something is wrong. I have had leg weakness and numbness to the point of falling for the past 5 years. For the past year I’ve had tingling in my feet and hands, right facial and arm numbness that does not go away. Extreme exhaustion and Brain fog. I also have been having weird vision issues when I watch TV l, almost like double vision. I have no answers and I’m so depressed because I feel like these doctors don’t believe me. Something is wrong! I can’t keep living like this. I have zero quality of life. Please any suggestions are very much appreciated. I am lost 😞

  1. You must be so frustrated, . My heart goes out to you. Have you been seeing a neurologist or were these MRIs ordered by your primary care doctor? Have you had MRIs of the spine and the optic nerve or just the brain? Here is an article about the diagnostic process for MS: https://multiplesclerosis.net/diagnosis. If your doctors have not been following the diagnostic protocol, you might want to get another opinion from an MS specialist. The National MS Society has a tool that can help you find one in your area. Here is a link: https://www.nationalmssociety.org/Resources-Support/Find-Doctors-Resources. There are several other health conditions that mimic MS and should be ruled out as well. Here is an article that lists them: https://multiplesclerosis.net/diagnosis/ruling-out-other-health-conditions. The symptoms you describe might be caused by some of these conditions, so it's important to make sure your doctor is running the appropriate tests. It is always possible you do have MS, but that the lesions are too small to see right now. Unfortunately, most people in that situation are not diagnosed until the lesions finally appear. Advocating for yourself can be exhausting, but it's important to keep trying. Please know we are here for you whenever you need support or a place to vent. You are far from alone. We have many members who have been in your same situation and understand where you are coming from. Thinking of you and wishing you the very best. - Lori (Team Member)

    1. Hi Briemu79, have you changed your diet to see if that helps? Doctors took ten years to diagnose me so don't wait for them to tell you. To me from what you've mentioned it sounds like MS. Have you removed dairy from your diet yet?

      1. I haven’t yet. I will try that. I’m think about eating gluten free too.

      2. I'm not totally convinced on Gluten free for MS. Dairy free yes and cutting back your saturated fats yes but gluten. I'm gluten free atm but I find some gluten free breads I have an MS reaction too as well. Maybe it could be vegetable oil in the bread or salt maybe, I'm not sure, still working through it myself.

    2. Thank you Lori. I really appreciate you and your advice. I’ve seen 2 different neurologist. They now want me to see a physical medicine doctor. I know I should but I’m at a point where I’m giving up. I don’t want to spend anymore money on doctors and tests. I just want to feel better but I don’t have any hope that they can help me.

      1. I'm so sorry that you are in this undiagosed phase right now that blows us apart physically, mentally, and emotionally. As hard as it is, please try to hang onto hope that you will get your answer so that you can go forward. Lori gave you excellent advise, and seeing the right neurologist -- an MS specialist Neurologist (in my opinion) is the route to follow right now. Keeps a journal, and I suggest you obtain/share physician reports with your next office visit. Meantime, try to stay as healthy as you can and prevent getting any illness or infections. We're here for you Briemu79, Warmly, Debbie (Team Member)

    3. Thank you for the words of encouragement. I need this right now. I know this going to be a long process but with good support I know I can get through it 😀

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