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Has anyone ever experienced being riddled with small nodules all over your body?

I have small nodules everywhere. They hurt like a bruise or injury, and it’s keeping me from moving. I’ve tried everything, and I just don’t know what to do. They are in all my muscles, my joints, even under my eyebrows. I just need to get rid of them ASAP... thanks.

  1. Hi amypollock! First off, these nodules sounds pretty miserable! Secondly, if you haven't done so already, please share this symptom with your physician. Your physician may refer you to a specialist for your nodules. Nodules could be a sign of some significant going on in your body (besides the already significant diagnosis of MS, of course!). I wish I could give you a great answer as to how to get rid of your nodules, but I just don't have that answer. Please don't hesitate to reach out to your physician and keep pushing for answers. I sincerely hope you get some relief from these nodules. Best, Erin, MultipleSclerosis.net Team Member.

    1. I have never personally experienced this, but it sounds absolutely miserable. Especially if they're causing additional pain!
      I would also encourage you to speak with your doctor about this. (if you've not already.)
      I'm sure that you would want to know what's going on and if there's something that can give you some relief from the discomfort they're causing you...
      Please keep us posted,
      I hope you get answers soon! Janus

      1. My physicians are absolutely sick of my pushing and I’m starting to realize they think I’m just crazy. My pcp referred me to a dermatologist but I’m not quite sure that’s the issue. I recently realized that that they aren’t so much nodules as they are insanely sensitive spots that if I rub they hurt as if I fell and bruised it really bad. I’m going to see my neurologist soon and I’m going to ask if it’s nerve related because that’s what I’m starting to think. I assumed they were nodules because of the pain I experienced was so bad they had to be knots underneath and then I pushed through the pain one day and realized there were no bumps underneath. I can’t believe I was wrong I’m usually not wrong about my symptoms I write everything down and I listen very closely to my body I’d just never pushed past the the pain hard enough to find there were no nodules but areas of pain in spots all over my body if you rub for more then 5 seconds I don’t know what they are but I do know it keeps me from a lot lol

        1. I’m practically addicted to heating pads at the moment lol

          1. Amy,
            thanks for the update!
            I know what you mean about the heating pads!

            That sounds like a good idea about seeing your neurologist to see if perhaps it's nerve related.
            Writing everything down, listening to your body, having to push past this pain and it sure seems like you've advocated for yourself!! I am just so disappointed that
            your physician(s) have taken the attitude you described.

            It sure can be disheartening when the doctors that we've chosen to trust with our healthcare let us down and downplay the very real pain we KNOW we're feeling!

            Please continue to keep us posted on this and I hope you can get answers and relief VERY soon!

            Thinking of you....Janus

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