Not yet diagnosed
This is my first time posting here because I have not yet been diagnosed with MS. But I have to say that I am 99% certain that I do have this. By chance do any of you folks know if there is any other autoimmune disease or syndrome that has head, facial, mouth and tongue numbness as a first symptom?
Hi
!
I'm sorry you have so many weird things going on. That's the terrible thing about any neurological illness - the symptoms can be remarkably diverse because the sickness affects how we perceive things.
My nickel’s worth of free advice? (Which, admittedly, is probably worth less than a nickel.) Doom scrolling WebMD is going to show you a dozen conditions you could, but probably don't have, and dozens more that you might, maybe, sorta, kinda could have, but very likely don't.
Have you had an opportunity to chat with any professionals to start the diagnostic process? If not, I hope you get the ball rolling soon, and if you have, then try to relax and live your life while you wait for answers. I know we're all wired to worry and seek knowledge, but dealing with MS, or any neurological condition, is about patience.
I'm curious - if I were able to wave a magic wand and tell you definitively right at this moment that you had MS, what would you do with that knowledge?
well first off, do I call you something different than sub normal? And then the next thing I wanted to say to you is the unfortunate fact is that I have been on disability since 2009. Because my leg was threatened to be cut off because of possible gangrene setting in from an ulcer on my ankle due to having dvts, in fact several dvts! So the unfortunate part is that it's hard to do exercise because of my disability also because of these debilitating symptoms I'm going on 4 weeks with these symptoms, I live in Indiana so right now it's getting cold outside today was the high of 49°. So yes it feels good in the coolness because I'm severely affected by the Heat, I can't sleep in my bed because I have a problem swallowing. I'm a caretaker to my 86-year-old mother and have been for 4 years now. The bad part about that is is as of late she has been taking care of me. To hire people to clean my home and to cut my yard if something I thought would never happen until these symptoms had arisen! I'm wondering does the cold weather affect you? And then the heat that I was speaking of makes me have this sensation of my skin burning, terribly bad. I'm thankful that I found this forum where I can speak to others with the same issues as I do. Thank you for your reply subnormal. Have a super week! Whoa,
, those are some tough rows to hoe!
Nope, no alias. I am subnormal and subnormal is me. 😀
As far as exercise goes, it's up to you to find something that works. I use a Pilates ring when I don't feel up to moving. Those things are great. I may not be able to run a block without getting winded, but I can crack walnuts between my thighs.
Temperature? My wife and I have been together a looonnnnggg time. I remember those two years of her menopause when I learned to appreciate being ice cold 24/7. Suffice to say we installed air conditioning back then and my life has been blissfully climate controlled ever since.
As you move forward in the diagnostic process, I hope you can keep a few things top of mind. Stuff will potentially be different, but different does not have to be bad. If you have MS, it can be challenging and overwhelming, but it doesn't have to rob you of your essential 'Liard-iness' - you will always be you. Wonder and beauty remains in the world, you may simply need to look for new ways to find it.
Thank you so much for your reply sub, I love how you think! How long have you had MS? How long after your diagnosis I should say? With your experience being here for a couple of years on this forum would you say mostly everybody comforts the coldness?
May I ask you if you remember, what your first symptom was?
My MRI is scheduled for October 28th, next month I have an appointment with a dermatologist because I think I also have cancer. And also next month I have an appointment with a rheumatologist, I need to find a different neurologist that specializes in Ms. And then looking ahead possibly having and oncologist, just in case.
I'm not sure if what I'm doing as far as going to the correct doctors and which tests will be done after the MRI if Ms is suspected.
Hi
. With all of the great research tools at our fingertips these days, it is tempting to search and search and search until you find answers. Unfortunately, you can't go much further in your quest at this point until you have those MRI results. If there are no lesions, then it is time to look at other causes. If there are lesions, it still could be something other than MS, but you can have at least undergo a lumbar puncture to either confirm MS or take your doctors down a different diagnostic path. Here is an article about health conditions that mimic MS and should be ruled out: https://multiplesclerosis.net/diagnosis. But, honestly, your best bet now is to try to remain busy and distracted until after your MRI. Regardless of your diagnosis, stress weakens the body and give symptoms a wonderful environment in which to flourish. Relaxation and distraction are your friends. Please keep us posted if you don't mind. As I have mentioned before, we are thinking of you and we want to know how you are doing. Gentle hugs. - Lori (Team Member)
