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Why do people who know you have MS still ask why you fall or limp? And how do you reply?? It bugs the heck out of me!

  1. Hi . That is a very good question. It's hard enough when strangers ask these questions. I imagine it must be awfully frustrating when people who know about your MS ask you questions that they wouldn't need to ask if they had done any research at all. I hope you get lots of answers from the community. We have one community member who had cards or pamphlets (I don't recall which) made to give to people whenever that kind of thing happen. She said it was especially helpful in her neighborhood, where she might need help if she fell or couldn't get home when she was out walking. I hope this helps. Thinking of you! - Lori (Team Member)

    1. Hi sue,

      I am fairly newly diagnosed and this also bugs the hell out off me too.

      "Things like why do you walk with a stick if you can stand"

      Or "there's a step there" when my foot drops and I trip

      I have tried to explain to work colleagues but I think it just falls on deaf ears and I'm too tired to keep explaining everything. It's a miracle I am even able to still get up and do the job.

      Got told last week that my contract probably won't be renewed because I'm a "liability" which really upset me.

      Just learning to live day by day and ignore the constant comments everyday.

      1. Hi . That is horrible that the company you work for would treat you that way because of your MS. Unfortunately, the laws that apply to employees do not always apply to contractors. You might want to consult with a lawyer to see whether you are protected under the Americans with Disabilities Act. Are there other opportunities for you with companies that might be more sympathetic? Thinking of you. - Lori (Team Member)

    2. Hi All,
      For me the most irritating thing is that my relatives know I have MS, but never ask about how I'm doing with it. They appear to think that as long as I'm still walking around I must be fine and am capable of taking care of someone else. It's hard to say "NO, I can't do something", but I'm learning to become more adamant about it and feel less guilty.

      1. I am glad you are advocating for yourself with your family, . Have you tried talking with them about it? Some people think they are doing the right think by avoiding the topic. They might need to be told that question and support are welcome. Wishing you the best. - Lori (Team Member)

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