Other people's perspective

Hey, ! Unfortunately, I think many, many community members can relate to what you wrote. I mean, I know it might help to know you are not the only one experiencing this, but I wish every person with MS and supportive and understanding friends and family. Does that make sense?


I wanted to share just one of many articles on the topic of unsupportive and/or unhelpful friends and family members -- https://multiplesclerosis.net/living-with-ms/frustrated-friends-family-impact-comments. You can also read the member comments at the end of the article, too. You'll see that many of our members have this problem as well.


And, I feel compelled to add that if you are ever feeling truly suicidal, please don't hesitate to reach out to the suicide/mental health helpline. You can call or text 24 hours a day. The number is 988. That's it. Just dial or text 988 to get in touch with someone to talk to.


You are always welcome to share our articles or articles from other MS communities with your partner (like this one! https://multiplesclerosis.net/living-with-ms/how-friends-family-can-help), although I know that doesn't often help. It seems like many individuals just don't get how all encompassing an MS diagnosis can be and a person is often accused of faking or playing up symptoms.


I am glad your Mom and a couple of good friends seem to be more supportive. I know support can make living with a chronic condition like MS at least a little more manageable.


Please know you are not alone here! I hope your partner comes around, but know we're here for you, even he doesn't.


Best, Erin, MultipleSclerosis.net Team Member.

Never wanted to kill myself but have have shared ur sadness with feeling alone because mostly I am. I have a partner of 22 yrs but nothings the same. I'm not the same but everyday is a new day.

Thank u