PPPV

Ive Been experiencing this PPPV
( persistent postural perceptual dizziness)
Doctors that ive seen all say its the MS and its not. I know my body, they dont
The only person that is helping.me is a Physiotherapist and an ENTdoctor that diagnosed me with this condition
My quality of life is affected
I am looking forward to walking without a walker because I am so dizzy only when im on myfeet
Has anyone ever experienced this .
One neurologist said to me that I have to learn to live with dizziness
( are you kidding me) garbage
No compassion̈, no emotions.
I feel like we're all alone.
Ive done HSCT ( HEMATOPETIC STEM CELL TRANSPLANT ! YEAR AGP no meds. Anymore.
Interesting how its done to eblate ur immune system. Just this PPPD I'm dealing with