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Sense of taste

Who else have lost their ability to taste? I used to be a really good cook and I made food liked by hundreds at SCA events as well as at home. I found that after diagnosis my family wanted me to stop cooking for them. At first I thought that they were trying for kindness and reducing the work load. It took several years before I figured out that I no longer made good tasting food. Has anyone else had a similar experience?

  1. That must be awfully frustrating, . You are not alone. Many people with MS complain that their sense of taste changes or becomes dulled. Here is an article from one of our advocates who mentions that very issue: https://multiplesclerosis.net/living-with-ms/changed-way-experience-world. Thinking of you! - Lori (Team Member)

    1. so gone for now are the days of homemade cheesecakes with various topping sauces. My stuffed chicken breasts with ham and bacon and various cheeses are no longer worth putting in your mouth. I can just barely make myself coffee and then nobody else wants any.

    2. Sending lots of gentle hugs your way, . - Lori (Team Member)

  2. Yes, I have the same as you've described here. I've had it for a few years now. And I've found nothing to help, and Doctors, say there clueless. Iv'e lost half of my body weight in the last couple months. I just don't get hunger anymore, as everything tastes the same, nothing like air. And the fact that, I'd rather be sleeping as much as I can, rather than being awake, and in misery doesn't help."I've just found this site now." And after tryping my reply, I just noticed it's a few year old thread.🙄 But it you see this. I hope you have gotten your taste back. And are back to cooking, as you mentioned it's something you really enjoy. Best wishes, and take care. 🧐

    1. we're so glad that you found this community and joined this discussion. We always keep the conversations going no matter when they started, so chime in any time!

      That said, I'm sorry to hear that you're dealing with lack of taste and unintentionally lost weight in the last couple months because of it. I hope that seeing this article helped you to see that you're not alone in this. Somehow just connected with others can be really helpful in getting through the day to day of MS.
      - Alene, moderator

  3. Hi all, I know what it feels like to loose your sense of taste, mine come and goes. It was one of my first symptoms. Now my tongue feels like it swells, lips and left side of cheek tingles.

    1. Hi ,
      We appreciate you reaching out. That has to be a bit scary.
      MS can certainly affect your tongue muscles and cause weakness.
      I thought I'd share a few links that may provide some additional information: https://multiplesclerosis.net/treatment/swallowing-problems-therapy
      https://multiplesclerosis.net/stories/flippin
      In addition, we always recommend bringing any new or changing symptoms to your healthcare provider's attention.
      ~Doreen (Team Member)

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