Staying sick.
Since I've started Ocrevus infusions I've stayed sick. Constant runny nose, sore throat, congestion and headache. Is this common or will I soon adapt to a weakened immune system?
I'm sorry to hear that you're not feeling well since the Ocrevus infusion. While I can't speak to Ocrevus firsthand, I did want to pass along some resources that we have here in this community about the medication. I've shared two articles below that you might find helpful. I'm hopeful that others will chime with their personal experiences too.
Best
- Alene, moderator
https://multiplesclerosis.net/treatment/ocrevus-how-well-works-side-effects
https://multiplesclerosis.net/caregiver/immunosuppression-ocrevusSince I started Ocrevus, I have had chronic diarrhea and such extreme fatigue. I'm thinking it's time for me to find something new.
I'm sorry to hear about your experience. Have you discussed these symptoms with your doctor? Also, here's a resource that we have on Ocrevus that you might find helpful.
https://multiplesclerosis.net/treatment/ocrevus-how-well-works-side-effects
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Alene, moderator
Ugh, I know this has to be frustrating for you. I hope you're able to get on a new treatment plan that brings you some relief. If you're comfortable please keep us updated on your progress with this and don't hesitate to reach out if you need additional resources, information or simply just support. Wishing you the best, Latoya (Team Member)
I was on something that made me I’ll like that it was dreadful I put up with it for a year then they changed my medication and I been loads better.
So glad to hear you've found something that works better for you. Mind me asking what has helped you to find relief? -Latoya (Team Member) that's challenging to experience negative side effects from a treatment plan. I'm glad to hear that you were able to work with your doctor to make the necessary changes. It's wonderful to have relief from those symptoms and to be feeling better.
Thanks so much for sharing your experience!
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Alene, moderator
hi I’m on a once a day tablet it’s a very mild chemo at first I lost some hair but it all came back and now no side effects it's interesting how they can repurpose medications at different doses to support other health conditions. We're glad to hear that you had such a positive with this medication.
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Alene, moderatorThanks for sharing! I'm glad you were able to have success with that and gain your hair loss back as well! I wish you more success in your journey! -Latoya (Team Member)
