Tucking from pain
Hi my name is Mary and I have MS for 29 years, Lately it is getting worse fast, I am tucking to my left side and worsens with working too hard. I just asking is there someone else out there who is experiencing this and what can I doto walk better? Someone suggested a back brace.
Hi
I am glad you have reached out. While I hope our community members chime in here with their experiences with this, I wanted to send over this article from one of our members and what helped them: https://multiplesclerosis.net/living-with-ms/portable-neuromodulation-stimulator. Jill (Team Member) Hi- I destroyed my spine from MS. As one leg got a little weaker, it actually began to shorten. Since I did heavy work, I ended up with a spine in a perfect “S” Conformational scoliosis. I now wear a lift in one shoe, which helps a teeny bit. It affects walking and I do a pretty good bride of quasimodo. I’d advise a good physical therapist. It sounds like you need to work on strengthening and stretching one side. I REALLY wish someone had told me this 20 yr. ago. The damage is irreversible.
Even if some of the changes can’t be reversed, it’s good you’ve found at least a bit of support with the lift and PT. Sometimes even small improvements in stability or pain can make a real difference in how the day feels. Wishing you the best as you continue on your journey! Thanks for sharing! Kindly, Latoya (Team Member)
I reported to my Dr (before MS) So about 20 years ago that my one leg had got shorter than the other. The comment was....under his breath....I seriously doubt it. Now I am having my "Rocker Bottom" Trainers altered so that my shorter leg 1" will match the other. The Orthotics specialist commented on how bad my scoliosis was when I saw him. But when I saw my new physio she said it's something else affecting the top of the back and neck.....sorry can't remember the name of it but it's commonly known as Hunchback. So, that's why one leg is shorter than the other and why I lean over to the side of the shorter leg.
Where I worked it was very physical and standing for 8 hours then off home to sort out the family. I had no idea I had MS. It was traced back to when I was 23 and I was being told this when I was 44. You just blame other things for problems you have. I even went to a neurologist for head pain when I was about 30. We had a 5 minute chat and he said it's just migraine. If only he'd done a scan. Anyway sorry to go on. Just to let you know that it's interesting to know we have similar problem. I was told nothing to do with MS. We'll see. Take care NettyReading your story, it sounds like your body was trying to tell people something for a long time, but the pieces just never got connected. So I can see why you’d have mixed feelings looking back now. Has the level of your care gotten better since those experiences? -Latoya (Team Member)
I am now seeing a neurological Physiotherapist. But everything else is the same. I was diagnosed in 2008. Had a constant neck pain. Dr sent me to Orthopaedic Hospital, they did MRI. They sent my results to a different Hospital (without telling me) I just thought all must be ok as scan was 4 month's ago and I'd not heard from them. Then I get an appointment to see neurologist at other Hospital.(thought must be to help me with my Migraines) He had a chat with me. Showed me the scan with "things" on my neck. Then said I'm sorry but you have MS. And that was that.. it was 2011 when I got to see an MS Nurse. My Dr tries his best. I did go to the Pain Management department a couple of times but it was like sitting in the headmasters office at school. So. That's Me. But I carry on. Ive just had a wonderful Holiday with my family too. My Grandchildren are my life. Take care Netty 🙂 💕
Thank you for sharing your story, Netty. It sounds like the whole diagnosis process was really confusing and honestly a bit overwhelming, especially not being told what was happening along the way. But it’s really good to hear you’ve found your way to a neurological physiotherapist now, even if the rest still feels much the same. What really matters is that you’re still getting out there and enjoying time with your family. I know those moments with your grandchildren mean everything, and it’s good you’re making memories with them in the middle of it all. Continue to enjoy those precious moments and I wish you the best on your journey. Kindly, Latoya (Team Member)
