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Urge to breathe

Hello everyone! I have a question. I have been diagnosed with MS for 5 years and I wonder if any of you have a trigger that make you all of a sudden take a deep breath? It doesn’t matter whether you awake or sleep or what you are doing I get this urge to take a deep breath. Does this happen to any of you?

  1. , this is a very interesting issue you described! I don't know if I have ever heard of another community member having involuntarily breath taking issues. Do you feel like this issue is preceded by shallow breathing or even a stop in breathing, almost like an apnea event, if that makes sense? While what you described doesn't exactly sound like apnea, I did want to share this article on OSA (apnea) and MS -- https://multiplesclerosis.net/living-with-ms/other-apnea. Since you do experience while sleeping, too, I would definitely mention it to your physician, if you haven't done so already.


    And I hope you get helpful feedback from other community members that may have experienced something like this.


    Best, Erin, MultipleSclerosis.net Team Member.

    1. thank you for the article. I have jotted down questions for neurologist and will address them when he text or call me. A sleep study would be a great idea. I have already had a Cardiovascular work up with stress test and echo and everything was great no issues. I am aware of most of this trigger breathing when I’m awake. I don’t awaken at night at least not that I’m aware of. I awaken each morning between 8:30 and 9:00 am unless I set alarm for an early appointment. All I can say I have to getter done!! 😁

    2. , I hope you get some answers and I hope the neurologist gets back to you in a timely fashion. And I get what you're saying -- the bigger presenting problems do take priority at first and we may not notice those underlying issues right away, but they need to be addressed, eventually. I am glad you are pursuing this, as breathing issues are never something to mess around with. I will be interested to see what the neurologist says and what your sleep study reveals, if you get one!


      Best, Erin, MultipleSclerosis.net Team Member.

  2. Hi ! I've not heard of this, but that doesn't mean that it's not MS-related. I would absolutely mention it to your doctor though.

    1. thank you Devin. I’ve read the article Erin referenced and it gave me great insight to what may be happening. OSA or CSA it needs to be treated. I’m a real stickler for taking care of and guarding my health.

  3. I have had something similar, it lasted for days and weeks at a time for about 3 months. It felt like my body wanted to take an involuntary breath, I wasn't short of breath at all, more like my body was trying to breathe without me requesting it or needing to breathe at that time. I didn't need to breathe deeply.

    1. I was thinking this only happens to me. You are right it tries to take over. Like you stated you are not short of breath or breathing shallow it just happens. My 02sat remains I high 90’s. Trying to get answers. Scheduled sleep study this month.

  4. I did wonder if it was something to do with messages going to my diaphragm getting jumbled up. I am not diagnosed at the moment however my GP suspects MS based on my symptoms so I’m awaiting various tests. I also wondered if it could have been anxiety related however other than the weird symptoms I was having I wasn’t feeling anxious! It didn’t seem to have a set pattern of when it happened, I could be doing various activities like walking, driving, lying down or cooking, however I’m pleased to say that symptom hasn’t returned. I haven’t come across anyone else who has had anything similar other than yourself, so I would love to know how you get on too, and good luck!

    1. it really just happens. It doesn’t matter what you’re doing. I’m sure it’s neurological system getting cross-wired and cross firing . I’m hoping to have answers soon after sleep study. Need to rule in or rule out and come up with a plan to take care of it. My neurological team work well together.

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