weird symptoms of MS.
I'm into my 14th year with PPMS at 68. My right arm and hand were the first to show signs of unresponsiveness, my legs to follow. Now I get a chill and my arm feels cold.
Hi
I can hear how challenging this is for you. Are you taking any medications for your PPMS? I am sending over this article, I hope it is helpful to read: https://multiplesclerosis.net/what-is-ms/primary-progressive. Jill (Team Member) This article did nothing for me. I've seen it in the past.
Hi,
! I hate to hear you're symptoms have gotten worse with the coldness of your arm and chills. This could be due to nerve damage messing with temperature signals or possibly poor circulation from reduced movement. It’s a common thing with MS. Have you had a chance to talk to your doctor about the cold sensation in your arm? Also, what kind of treatments or therapies are you currently using for your PPMS, and have they helped with the new symptoms your dealing with right now? -Latoya (Team Member) I'm not on any MS treatment therapy with PPMS and 68. I have a lot of nerve damage. I've tried all of the alternative therapies. IN order to see my neurologist, I would have to find transportation after waiting for an appointment... by then my body has changed. My N. Cal health care system changed making it hard to message my neurologist. Thank you for replying.
Wow, sorry to hear of your symptoms, MS can be so darned haphazard. We share something in common, we were both diagnosed at about the same age & year. Haven’t met many who were Dxed in their 50’s. But I have RRMS, still. Yours has more implications than mine.
After 13 years going on 14 later this year, and about 5 relapses, the various symptoms are piling up, but I’m generally okay. Still, nothing about having a chronic disease is easy, my sympathies are with you.
But Constance, you never responded to the admins here, one who asked if you are on PPMS therapy, and you didn’t really say if you took that article with you to your MS neurologist to see what they think, & if they have any new ideas to treat your bothersome symptoms, perhaps if you would follow through on both questions those here might be able to help more, as should your doctor. I also hope you are seeing an MS Neuro, preferably in an MS Care Center bc they all participate in research & have other specialists who could help you more. If you don’t go to one of those centers, try to see a neuro there, for a full evaluation of where you are now, & possible new treatments for you.
Wishing you well on this tough journey. You are not alone, though this can be a very lonely disease.
DD
