Weird MS Symptoms
Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?
Share your "weird" symptom here and see if others have.
Inner ear pain
Dear MS buddy Tanya, First! Congratulations on expecting your First Grandchild!! There is nothing like it!! We were older when God Blessed us. (68 & 71) Now we have “2” and after all the boys, there is something quite special with a baby girl!! I have had my Ms over 35+ years. I was misdiagnosed many times. It wasn’t untill I got BellsPalsy that my Neurologist nailed the MS! Those pictures that Christmas and Easter made me look like I had a stroke@ 35. My heat difficulties have been since the start of my BellsPalsy. In a matter of seconds I can look like I just stepped out of a shower!! I have been on Lexapro since the MS was proved, by a MRI and spinal tap and the results were sent to 3 major hospitals. All three hospitals concurred I had MS. My family physician passed away 2 years ago. The gal who took his practice over, said I didn’t need the Lexapro and wouldn’t renew it. So seeking a NEW Neurologist and GP, my 3 sons and husband took me to
U of M AnnArbor. There they noted my problem was the lack of the Lexapro, which I found to be a Multiple Sclerosis medication. However my perspiring wasn’t completely covered w/the medication anymore. My doctor there at
U of M connected me w/the MS society and they got me an Ice vest. I love this thing!! 4 sleeves of refreezeable flat cylinders of ice front, back and under my arms!! “HEAVEN”!!
Tanya, I would love to be in touch with you. Are you on Facebook? My name there is “Sunshine Sue Dudek” look me up, but let me know who to watch for, to welcome you in! God Bless you Sweetheart! I pray 🙏🏼 for the Best for you!!
Love,💕
Sunshine Sue Dudek
one mornings I woke up complete deaf
It was like being shut behind glass The first time it happened I completly panicked
and rushed to A+E After sitting in the waiting room for 81/2 hours I saw junior doctor Who old said tested you blood it's normal So is your temperature and blood pressure all are normal Go home and stop wasting our time
Using a pen and paper i replied But I can't hear or talk
He wrote down That is just aging It's normal Now get out of the A+E there are real patients who need my time.
My hearing came back after 3 days Since theher occasions 1st attt of me.ack it has happen on 4 other occasions To cope I bought my self a childs chalk board
chalks that I carry in my backpack. A friend gave me stufaner embarrassed for taking the mickey oukes my partfed as an emotional support toy Which I also carry around with me. Now I reason being deaf as useful as now I can't no longe rhear my partner nagging me for not doing the washing up I also have an Id card explaining I can't hear very well and often can't speak.
Which makes my partner embarrassed for mocking me with Goo-Goo baby noises when I stutter
So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.
I feel switches different times, but always when I’m resting and almost every night when I lay down to sleep, I will get them in my torso. My whole torso will jerk, etc.. It’s like after I let my muscles completely relax. my voice has changed and I will be speaking and then have like a word come out as a slur (my voice slurs). And also a change in the pitch.
My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.
my finger nails are very thin and weak too. They tear so easily that they are continuously sore and unsightly. I too have found that using nail gel makes them stronger but I worry about the possible damage to my nail bed with long term use. I had that problem, so I started eating pork hocks once a month. My nails grow equally the same and more often thickening my nails.
Yes I try not to startle but the noise is overwhelming.
Me too. It's very startling. Try my best to manage the reaction
