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Weird MS Symptoms

Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?

Share your "weird" symptom here and see if others have.

  1. Inner ear pain


    1. me too

    2. I had MRA etc I saw neurointerventional radiologists. All neurologists dismiss this. In the beginning, I was misdiagnosed with Ménière's disease. It was and still is my right ear.

      This is definitely tied to my balance. It the beginning it was faint , then became older every year and mire chronic. It is always dismiss. I just found out I have a large cyst in a sinus by my right ear. I am going to see a sinus specialist.

      To me - it sounds like a nerve pulsing in the rthymn of my pulse. I have tried but no results.

  2. So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.

    1. thanks for your suggestions. I’ll take your suggestions in advisement when I hear my drinks and food. I have watched Keeping up Appearances and I find it hilarious too! I love using humor to help with the difficulties of MS. I find taking myself too seriously is a drag and a little laughter is the best medicine! I wish you the best in your life with MS

    2. I meant when I heat my food. Not hear! I hate when autocorrect inserts words it thinks I want to type. Often it’s Incorrect!!😂🤣🤪😁

  3. My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.

    1. oof! But you are not alone in those sensations, as you can read from others here. No idea if our MS researchers & neuros have come up with any treatments for that icky symptom. Have you mentioned these to your MS Neuro?

      Wishing you all the best, & don’t fail to tell your fam & friends this is not such an uncommon MS symptom, & that you are NOT crazy!

    2. It's the nerve endings. I have very thin nails; I have had to now have gel nails on. I was waking up like I had a fight with a cat and lost. I was put on Amitriptyline works great, however now having worse memory issues.

    1. Yes I try not to startle but the noise is overwhelming.

    2. Me too. It's very startling. Try my best to manage the reaction

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