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Weird MS Symptoms

Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?

Share your "weird" symptom here and see if others have.

  1. Inner ear pain

    1. That picture is inspiring!! I found out that I will be a Grandmother in July, as much as I am unbelievably excited, I have my concerns at the same time. My Menopausal symptoms and my MS symptoms are battling and I’m not sure who’s winning but I’m losing!!
      And you have help me learn that maybe the overheating is not just my Menopause which I’ve tried to explain to others. Thank -you, and I wish you all the best with your journey!

    2. Dear MS buddy Tanya, First! Congratulations on expecting your First Grandchild!! There is nothing like it!! We were older when God Blessed us. (68 & 71) Now we have “2” and after all the boys, there is something quite special with a baby girl!! I have had my Ms over 35+ years. I was misdiagnosed many times. It wasn’t untill I got BellsPalsy that my Neurologist nailed the MS! Those pictures that Christmas and Easter made me look like I had a stroke@ 35. My heat difficulties have been since the start of my BellsPalsy. In a matter of seconds I can look like I just stepped out of a shower!! I have been on Lexapro since the MS was proved, by a MRI and spinal tap and the results were sent to 3 major hospitals. All three hospitals concurred I had MS. My family physician passed away 2 years ago. The gal who took his practice over, said I didn’t need the Lexapro and wouldn’t renew it. So seeking a NEW Neurologist and GP, my 3 sons and husband took me to
      U of M AnnArbor. There they noted my problem was the lack of the Lexapro, which I found to be a Multiple Sclerosis medication. However my perspiring wasn’t completely covered w/the medication anymore. My doctor there at
      U of M connected me w/the MS society and they got me an Ice vest. I love this thing!! 4 sleeves of refreezeable flat cylinders of ice front, back and under my arms!! “HEAVEN”!!
      Tanya, I would love to be in touch with you. Are you on Facebook? My name there is “Sunshine Sue Dudek” look me up, but let me know who to watch for, to welcome you in! God Bless you Sweetheart! I pray 🙏🏼 for the Best for you!!
      Love,💕
      Sunshine Sue DudekGrandbabies on my lap

  2. So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.

    1. Thank you so much! This is more helpful than you can imagine. Happy Halloween!

    2. , are you on any muscle relaxers? As my MS progressed I needed “Flexeril”. (Prescription med). I have up to 3 a day. Night time is the worst for me, bc your body is trying to relax and I get spasms everywhere!!
      I hope this helps you!!
      🫶🏼
      Sunshine Sue

  3. My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.

    1. my finger nails are very thin and weak too. They tear so easily that they are continuously sore and unsightly. I too have found that using nail gel makes them stronger but I worry about the possible damage to my nail bed with long term use.

    2. I had that problem, so I started eating pork hocks once a month. My nails grow equally the same and more often thickening my nails.

    1. Yes I try not to startle but the noise is overwhelming.

    2. Me too. It's very startling. Try my best to manage the reaction

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