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Weird MS Symptoms

Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?

Share your "weird" symptom here and see if others have.

  1. Inner ear pain

    1. Glad to hear that you're doing pretty good, Marcia. Have you found anything that seems to help with that stiffness and soreness in your hips and legs? 🧡 Kayleigh, MultipleSclerosis.net team

    2. try lemon ginger tea with a little turmeric.they are all anti-inflammatory and i find it helps with the stiffness and soreness.

  2. So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.

    1. I'm sorry to hear that you're experiencing pain. It's incredibly frustrating and disruptive to day to day life. I don't know if you've seen this article yet, but I figure that I would pass it along in hopes that it might offer some helpful information. As always, take what resonates and leave what doesn't. https://multiplesclerosis.net/living-with-ms/physical-activity-leg-pain-relief
      Best
      Alene, moderator

    2. I was suffering from the "twitching and spazzing" frequently, Magnesium alone did nothing, but I started taking vitamin D-3, and in the month that I've been taking it, mine have virtually disappeared!

  3. My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.

    1. I have this weird feeling constantly! Mostly on my head. Like bugs crawling on my head 😖 Some days it just makes me want to scream! I don’t know any other person with MS who has this symptom so even they can’t help. The only thing I have found that helps at all is my migraine cold cap and even that is just a temporary thing. I hope you find something that works for you

    2. I get the same feeling I worked at an elementary school and went to the school nurse thinking I had gotten head lice. No signs of it and a couple days later I went to my family physician. She said it was a nerve thing and subscribed meds that didn’t help. 🤬

    1. I used to get electrical shocks when I touched metal shelves.

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