Weird MS Symptoms
Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?
Share your "weird" symptom here and see if others have.
Inner ear pain
me tooI had MRA etc I saw neurointerventional radiologists. All neurologists dismiss this. In the beginning, I was misdiagnosed with Ménière's disease. It was and still is my right ear.
This is definitely tied to my balance. It the beginning it was faint , then became older every year and mire chronic. It is always dismiss. I just found out I have a large cyst in a sinus by my right ear. I am going to see a sinus specialist.
To me - it sounds like a nerve pulsing in the rthymn of my pulse. I have tried but no results.
So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.
I have the itching on my ankles and top of my feet. I always end up scratching in my sleep and randomly through the day until it finally rips the skin and bleeds, all while still itching !! It's crazy!! 
interesting that I also have itching of my toes and the balls of my feet and I had very thick skin on my heels which I thought was just callous. The itching was intense to say the least. my internist also thought it was callous.
Many years later when I finally saw a dermatologist he told me I had psoriasis which was causing the callous-like skin on my heels.The dermatologist at the time, gave me medication that has a steroid in it and this has actually helped. He retired recently. I went to see a new dermatologist (waited eight months for the appointment!) and he was not impressed when I showed him the medication that worked for me. I have one and a half bottles of this compound left. The new dermatologist recommended by my previous dermatologist who retired recommended some over-the-counter type of cream which I bought, but I was not convinced he would re-order the prescription that doeswork for me if I wanted it or needed it. Actually, my feet and heels have been better ( not getting such thick heels like I used to ) and I don’t need the medication ( which is a compound )!as often as I used to. I use it every once in a while when I need to. The itching of my toes lately has not been a big problem, so maybe it’s the hot weather or maybe it’s not going out a lot which I hardly do these days; I’m not sure. Maybe I just don’t feel it as much anymore. My toes on both feet have left over permanent numbness feeling, as a result from the transverse myelitis 20 years ago.
My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.
oof! But you are not alone in those sensations, as you can read from others here. No idea if our MS researchers & neuros have come up with any treatments for that icky symptom. Have you mentioned these to your MS Neuro?
Wishing you all the best, & don’t fail to tell your fam & friends this is not such an uncommon MS symptom, & that you are NOT crazy!It's the nerve endings. I have very thin nails; I have had to now have gel nails on. I was waking up like I had a fight with a cat and lost. I was put on Amitriptyline works great, however now having worse memory issues.
Yes I try not to startle but the noise is overwhelming.
Me too. It's very startling. Try my best to manage the reaction
