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Weird MS Symptoms

Have you ever experienced what you thought was a "weird" symptom and wondered if others with MS have experienced it too?

Share your "weird" symptom here and see if others have.

  1. Inner ear pain

    1. scalp pain! My hair hurts!

    2. Gosh, MS can be so weird, right? I couldn't believe it the first time someone mentioned their hair hurting that it was an MS thing! As soon as we started asking around, so many people mentioned experiencing that as well! One of our writers, Kim, wrote a really great article about it as well that I'll link here if you want to take a look: https://multiplesclerosis.net/living-with-ms/hurting-hair. If I may ask, do you find that your hair hurts during any time in particular? What does your scalp pain feel like? What I mean is, is your pain more tingling hurt or is it like a burning sensation? Would love to more about it if you're open to sharing!! 🧡 Kayleigh, Team Member

  2. So many twitches! Mostly when I'm resting, especially in the morning when I first wake up. I lie in bed feeling random twitches/jerks in my arms, shoulders, hands, legs, feet.. I never know where will twitch next...sometimes one or more per minute.

    1. LOL Sounds like fun! Frankly, I would tip over! I cannot stand up in the shower and shampoo my hair -- closed eyes, both hands in my hair!
      I would fall almost immediately. Lost in space!

    2. yes and it's been like that since I was a teen really

  3. My recent one has me wondering is this the MS or anxiety. Occasionally I get a feeling like something is crawling on me. It's just in one spot or another, moves all over the body, but there is nothing there. It's quickly there and then gone. Sometimes it'll be once, other times it'll be once here, then in a few seconds again somewhere else.

    1. I haven’t felt knees down or elbows down since 2009. Kept complaining numbness dr wouldn’t listen until finally everything but my head was numb

    2. I hear u I had symptoms since I was 22 I believe finally got them to listen to me at age 37. It’s so frustrating seems like dr don’t believe you or think your crazy and you know something nothing t right. My dad had MS too & they still wouldn’t listen. I hope u get better help from your drs than I experienced

    1. I used to get electrical shocks when I touched metal shelves.

    2. when loud sounds scare me electrical shocks go thru whole body. I feel like people don’t believe me

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