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Hello, I’m also new to the community. I wish I could help you.

I was diagnosed Oct 2000 and still have questions as this MS stuff differs and I believe doctors still don’t know everything about the effects as everyone’s body is different and even though most symptoms they are aware of there some that still make me feel like they think I’m making up my issues which really sucks as I really just want answers and want to feel normal like before MS but I know that isn’t going to happen so you just suck it up and learn to deal with every new hiccup. Took me quite some time to get diagnosed. Even was told when I got up in the morning to tell myself I’m fine which I excepted as these were doctors just for my symptoms to get worse. Now I’m not an aggressive person but after dealing with pain, double vision, vertigo where the world was spinning so bad I couldn’t stop throwing up, and even loosing control of my legs to where I learned to vacuum on my knees as I had three small children. Well I went in there and I cursed and let them know they were going to find something because I could not live like that. The doctor looked at me and said the only thing he could do as my blood work came back fine was order an MRI I said do it! Well guess what? Their attitude changed after that as I had a massive lesion course at the time they weren’t sure what it was so scared me as first thought is tumor (yikes) anyhow did spinal fluid test and my results were off the chart. Since then I was diagnosed 7 times with MS as I moved a lot and every doctor said MS was being misdiagnosed (getting my hopes up I didn’t have it) well of course I have it and have had to learn to adjust and cope with a lot of my questions no really being answered. I never reached out to an MS site as I didn’t have time as a had three small children, symptoms that challenged me every day, and a marriage that ended because my spouse said I was damaged and after purchasing a book on MS he decided he couldn’t handle my issues. So trust me I understand the frustration as I did not have a support system so if there’s ANYTHING I can help with…. I’m here

Hi , I'm so sorry if we've made you feel overlooked in any way. It certainly wasn't our intention. I noticed that you posted a few forums and wanted to make sure that you saw that you had some responses there. I'll link them below:

https://multiplesclerosis.net/forums/ms-hug-4

https://multiplesclerosis.net/forums/jerking-1

I also wanted to let you know that your jerking forum was shared on our Facebook page and there were a few responses there as well. You can see that here (I apologize for the unnecessary and long URL): https://www.facebook.com/MultipleSclerosisDotNet/posts/pfbid02vjd4uZa2NAiqu4XUgh7x5iwAYhTGMtpwvCMovgp4oWHQ7FD4hAVmN4NMa7tUAsfAl

I hope that helps while we wait for others to chime in. Erin mentioned in one of her responses to you that the community does ebb and flow sometimes. It might take a little bit of time but hopefully you'll get some responses soon. Until then, I hope to see you around in the community. 🧡 Kayleigh, MultipleSclerosis.net team