Why now?
After a lifetime of abuse, failed marriages , taking charge of my life and myself. Finally being free and in a brand new town ,house and starting my life again . I began to fall without tripping or for any obvious reason I had feelingslike i was on a trampoline when walking. I decided to take myself to the doctors. He sent me for urgent mri scan ,bloods and this showed ms lesions on my spine and in my brain. It was primary progressive multiple sclerosis.
Although this was a devastating diagnosis I wanted to try to take charge of it . I always try to be positive no matter what happens to me . It felt that I just had a new abuser but this time I was ready for what ever it throws at me . I am not going to lie ,some days my pain and fatigue are really extreme and I can't do much of anything . I choose those days to just rest on the sofa.
My 2 children who are both adults are dealing with their own issues my son is autistic, my daughter has severe anxiety . So its down to me myself and I to deal with everything.
As well as helping them but that's OK . I have declined slowly and will have to just take each new challenge and deal with it as much as I can.
,
Thank you for being here and sharing your story.
You certainly have been through quite a bit.
However, it sounds like your resilience and take charge attitude will help you get through anything that's thrown at you.
All my best, Doreen (Team Member)
My goodness... After everything you’ve been through, taking charge of your life and moving forward in the face of such a devastating diagnosis is inspiring. It takes an incredible amount of courage to navigate not only your own challenges but also to be there for your children, who have their own struggles. It’s also powerful that you view MS as something you’re ready to face head-on, even though it feels like another challenge life has thrown at you. Your positivity and resolve to take things one step at a time are a testament to your inner strength. How do you find moments of peace or joy for yourself when things feel overwhelming? You’re truly an example of resilience in action, and I hope you continue to find moments of peace and rest on this journey. Even though it feels like it at times, you’re not alone in this fight. We're here for you, always
🧡 -Latoya (Team Member)Latoya, I love being in my garden just pottering . I also volunteer at my local hospital where for the last 9 years have been so happy , helping and supporting families and patients who are end of life . This gives me time to rest be myself and help others . Mostly now I do the admin but if needed I'm happy to go sit with a patient.
You're in good company, Butterfly! 🦋 We have a ton of community members that also love gardening. Something about being able to put your hands in the dirt and watching beautiful things grow is just the most wonderful thing, isn't it? Do you garden plants, vegetables, or anything else? Like Latoya said, I'm also really glad you found this community. 🧡 Kayleigh, Team Member Your work must mean so much to those families and patients, especially during such difficult times. It’s beautiful that you’ve found something that allows you to rest while still making a difference. You’re truly giving back in such a meaningful way! Kuddos to you! 🧡 -Latoya (Team Member)
it sounds like we could be friends! I'm still undiagnosed, just had my cervical and thoracic MRI today and am awaiting results. The trampoline analogy is excellent! I compare it to being on a small boat at sea, but I feel that we're experiencing similar sensations.
I'm so sorry for what you have been through. Your character and strength shine through, and for that I commend and admire you.
This is a wonderful and supportive community, and I look forward to reading more of your story.
Much love 💜💜
your encouragement for the community here is always so wonderful to see and is felt by us all.
Alene (team member)
