braindeadmom
"I just made my own point.... I just wanted to move the “cursor” back to end of statement and ended up “sending” my comments on frustrations with Cog Fog. I think the most challenging part is the unpredictability of severity and occurrence of significant fog. Most of us have come up with coping strategies, when these fail, it is SO frustrating!! Folks think they are helping when they tell u,”Don’t worry, it happens to me all of the time.”. Trying to explain how it differs is pointless. This often leads me to feeling like a “fraud”. Mayb I SHOULD JUST SUCK IT UP and get back to work..... Then I have a day where I can’t remember how to use the TV clicker(same one I have had FOR YEARS) I forget I let the dog out... I stare blankly at my quicken ledger and have no clue what I did wrong when entering stuff, Inleave the house for a simple walk and for several minutes draw a blank on how to get home. Sometimes these issues are “momentary” and sometimes it’s just that kind of a day”. Sometimes the fog clears and I feel I can contribute intelligently. But I cannot always know when I will have issues and when the entire day is a “wash”. After 20 years, I can guess situations that may make things more difficult, and I am better at modifying my routines and environment.... keep temp under 72’, avoid crowds and noisy spaces, am is better, never try anything requiring brainpwr when tired(and how often do u NOT feel tired?). What I realize most days is that managing these things IS MY FULL TIME JOB...... but try explaining it to the rest of the world... Anyone else have anxiety attacks every time the Disability folks call or send the forms for the annual updates??"
"Am I the only one who has difficulty figuring out how to post comments on articles? Yes, I have always been a but tech. challenged, but seriously..... Just finished the cog fog article by Devin. I can REALLY relate to the issues and feelings he shared. Had to retire from nursing at age 37. Losing the ability to process info quickly and accurately has been demoralizing at times. And trying to explain this to others is incredibly difficult(including the Neurologist and the Disability Judge) "
The site can be a bit confusing until you get used to it, @braindeadmom (Love your username!). If you go to the bottom of the article, you will see the heading "Comments" with a blank text box below it. Just type your comment in the text box, and then hit the blue button below the box that says "Post Comment." If you have been reading comments and you want to reply to the article itself, you will find that text box above the comments. If you want to reply to another poster, click the word "Reply" below that person's comment.
I hope that helps because I am sure Devin would like to see your comment. If you are still having trouble, just message me or post here again. Best wishes! - Lori (Team Member)
"up and moving"
That can be quite an achievement some days, I am sure, @braindeadmom! Enjoy the day and the weekend! - Lori (Team Member)
"Good day"