What Not to Say to ME With MS, and Why I Sometimes Feel Like a FraudI know we have an invisible disease, but if there is anything that bothers me, it is somebody commenting on my symptoms. You can’t even see my symptoms! What are... By Therry Neilsen3 min readBookmark for laterReactions0reactionsComments55 comments
MS: The Disease of PatienceMultiple sclerosis is a disease that revolves around patience. There are many aspects of living with MS that force you to slow down, whether you like it or not. It’s... By Devin Garlit3 min readBookmark for laterReactions0reactionsComments13 comments
What Causes My Cog Fog and How I Manage ItFolks, today as of my writing this is the kind that leaves me gasping and reeling. It’s not the first day I’ve had like this, and it won’t be the... By Kim Dolce3 min readBookmark for laterReactions0reactionsComments46 comments
Prompted To Reflect On My Own DisabilityI recently happened upon a book about a disabled individual. It was an interesting read. I am a reflective person, and reading the book prompted me to think of, well... By Dianne Scott2 min readBookmark for laterReactions0reactionsComments5 comments
MS Risk and the Herpes Virus: Is There a Link?Doctors and researchers still do not know what causes multiple sclerosis (MS). Some factors imply that an infectious agent, like a virus, may have a role in triggering MS. These... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Navigating the Summer with Heat IntoleranceThe arrival of summer always brings along a sense of apprehension for me. I’m a Jersey girl – born and raised. So for the past 43 years I have been... By Alene L. Brennan, RYT3 min readBookmark for laterReactions0reactionsComments10 comments
Living Life as a "Manly Man" with MSYes, you have heard it from me, my “Manly Man Life” is now a “I forgot what a Manly Man would do.” I have mentioned in other articles how my... By Mike Russell3 min readBookmark for laterReactions0reactionsComments6 comments
Side Effects: Choose Your Own Adventure!When treating multiple sclerosis (MS), whether it’s the actual disease itself with DMTs (disease-modifying therapies), or symptoms with prescription medication, you’ll probably run into this problem. Every available treatment option... By Matt Allen G4 min readBookmark for laterReactions0reactionsComments15 comments
Observation SkillsI was outside on my deck with my not quite 2-year-old granddaughter. We were having a pleasant conversation, as much as you can have with a toddler, when she paused... By Laura Kolaczkowski2 min readBookmark for laterReactions0reactionsComments2 comments
Fighting Back Against Ageism in the MS CommunityOver the last few years, I’ve been outspoken about the lack of inclusion for people aged 60 and over within the MS community. Unfortunately, we’re a group that sometimes lacks... By Cathy Chester3 min readBookmark for laterReactions0reactionsComments35 comments
My MS 'Next': Considering Home and 'Re'-Homing CareI've been grappling with thoughts of my MS 'next.' Who knew that a 'pivot' could induce such major changes? I didn't. It's time to really evaluate what specific care I... By Dianne Scott2 min readBookmark for laterReactions0reactionsComments5 comments
Supporting My Support Partner: Part 2Anita talks about both managing her own MS and caring for her support partner in a time of need. Read the first part of her story. The tough times called... By Anita Williams2 min readBookmark for laterReactions0reactionsComments3 comments
Sharing One Of My 'In Spite Of MS' ExperiencesI did a thing, and it was awesome! I was unsure initially but encouraged to go for it, so I did. It was a success. I couldn't ignore the twinge... By Dianne Scott3 min readBookmark for laterReactions0reactionsComments14 comments
If I Could Get Better, I Would“Have you tried this diet? Maybe you’d be better if you worked out more. Have you tried using more weed? I heard mushrooms are helpful, can you try that? I... By Devin Garlit3 min readBookmark for laterReactions0reactionsComments7 comments
Caregivers and BurnoutCaregiver: what’s the first thing that comes to mind when you see this word? This may vary depending on whether you are the caregiver of someone diagnosed with multiple sclerosis... By Dixie Willis, MA, LPCC, NCC3 min readBookmark for laterReactions0reactionsComments0 comments
You’re Invited: Girls Night in the Hot Tub (with a Heat Sensitivity)Imagine getting an invitation to a girls' night out with your closest friends, where you all planned to catch up on life, have some snacks, and unwind in a hot... By Alene L. Brennan, RYT3 min readBookmark for laterReactions0reactionsComments29 comments
Community Spotlight: First Descents and Its Programs for People With MSWe sat down to talk with Kristin McMaster of First Descents, a nonprofit that provides free outdoor adventures for young adults (ages 18 to 45) living with health conditions such... By MultipleSclerosis.net Team4 min readBookmark for laterReactions0reactionsComments0 comments
Supporting My Support Partner: Part 1Living with multiple sclerosis (MS) has made it important for me to accept assistance and support. I had to learn my own limitations and when to ask for what I... By Anita Williams3 min readBookmark for laterReactions0reactionsComments5 comments
My Experience with DMTs for MS and What I Wish I Had KnownThroughout my multiple sclerosis (MS) journey, I’ve been on a variety of different medications for MS called disease-modifying therapies (DMTs). DMTs come in several forms including injectable medications, oral medications... By Matt Allen G4 min readBookmark for laterReactions0reactionsComments73 comments
My Nurse Stole My DignityI've lost a lot in my 23-plus years of living with Multiple Sclerosis. My career, numerous partners and relationships, my ability to run (and sometimes even to walk), and travel... By Devin Garlit3 min readBookmark for laterReactions0reactionsComments46 comments