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Does anyone else get frustrated at people thinking we have Myalgic Encephalomyelitis (ME)?

When I say MS, people I think don’t realize MS is very different from ME (Myalgic Encephalomyelitis, commonly known as Chronic Fatigue Syndrome, or CFS). They treat me like I am making it up and just a bit lethargic. MS is neurological and autoimmune, is this correct? I feel like people don’t take me seriously so often I don’t even bother to tell people.

Community Answers
  • Shelby Comito moderator
    8 months ago

    Hi Gemma, thank you for your question. I’m so sorry it feels like others are misunderstanding your condition – I can imagine that must feel so frustrating. I hope others will chime in and share their experience with you. Here’s an article from one of our advocates about his experience with feeling misunderstood if you’re interested:
    Although his wasn’t mistaken for ME, I hope you will find it similar and relatable. Thank you for reaching out and for being part of our community! Best, Shelby, Team Member

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