Not My Type of MS...Another reason there are so many more treatments for RRMS than PPMS is that PPMS seems to be a more difficult problem to solve....Reactions0reactionsComments107 comments
Understanding Different Types of MS...PPMS can be active or nonactive. With active PPMS, new areas of damage (lesions) appear in the brain or spinal cord during relapses....
Progressive-Relapsing MS...It is similar to primary-progressive MS (PPMS) because both types of MS are steadily progressive from disease onset....
Primary Progressive MS...Primary progressive MS (PPMS) is one of several types of MS. In PPMS symptoms come on slowly and steadily worsen over time....
Took 16 years to finally make a real change....In 8/2013 I joined a PPMS drug study at NIH. In 9/2013 the NIH officially diagnosed me with PPMS, as I've suspected for 15 years....Reactions0reactionsComments4 comments
Even Though I Have PPMS, MS Is MS Isn’t It?...PPMS, as mentioned, continues to progress over time....Reactions0reactionsComments66 comments
Community Views: What is Life Like With PPMS?...PPMS does not go through periods of relapse or remission like other forms of MS....Reactions0reactionsComments20 comments
PPMS Treatments to Help Slow Progression...and a very effective DMT for PPMS....Reactions0reactionsComments15 comments
PPMS Canada...Hi, I'm Brian, I'm 61 (2014) and was active when younger. I'm still active now doing 25 exercises a day only now from bed or my wheelchair. I have 8...Reactions0reactionsComments1 comments
Why Is PPMS Hard to Diagnose?...A two-year observation indicated I had PPMS....Reactions0reactionsComments14 comments
One Foot in Front of the Other...She died last year at 69 after a brutal fight with PPMS. I HAVE TAKEN COPAXONE, Tysabri and just started Ocrevus last week....Reactions0reactionsComments1 comments
Secondary Progressive MS...SPMS is different from both RRMS and primary progressive MS (PPMS). PPMS does not start with an initial relapsing remitting course like SPMS....
The Latest on MS Clinical Trials...7 Most treatments that are studied for RRMS do not work for PPMS. But some trials on treatments for PPMS have shown promising results....Reactions0reactionsComments7 comments
Living With PPMS...I was diagnosed in 2014 with MS. My doctor didn't tell me for a few years that I had PPMS just MS. I went from a cane...Reactions0reactionsComments4 comments
An Unexpected Diagnosis...My neurologist tells me I have PPMS. I started the DMT Ocrevus earlier this year. I have yet to decide if the drug is working....Reactions0reactionsComments4 comments
What Are the Differences Between CIS, RRMS, SPMS, and PPMS?...People with PPMS do not experience the remissions and relapses as people with RRMS do....Reactions0reactionsComments3 comments
What are the Courses of MS?...RRMS develop SPMS within 10 years of diagnosisPPMS - Primary-progressive MSAbout 10% of people with MS are diagnosed with PPMS initiallyRRMS - Relapsing-remitting...
Newly Diagnosed with Primary Progressive MS...I was diagnosed with RRMS in 2016, but apparently really have PPMS....Reactions0reactionsComments4 comments
No Way...I was 57 at the time, a bit on the older side (or so I thought) for a PPMS diagnosis. I have many lesions in my brain....Reactions0reactionsComments0 comments
