It's my life, and it's definitely a journey, worth every minute!!
All my life I had heard the name multiple sclerosis my dads mother had it. I was only 13 when she passed away and never really got an understanding of what it was. Then about a year after having my first child 3 days before I turned 19 actually on my grandmothers birthday (weird coincidence) I was diagnosed with MS.
All day long I had been having trouble with my speech it started off slow but by that night I had lost control of the left side of my face and had severe slurred speech I didn't realize how bad it was until my husband made me go to the ER. They ran a number of test over a 4 day period before coming to a diagnosis. I still remember when the doctors came in to give me the news. There were at least 6 of them my husband was sitting beside me on the edge of the bed. They asked have you ever heard the term multiple sclerosis. That's when I finally began to understand what multiple sclerosis was and what it was capable of, but I still had no idea what I was in for.
And then there have been my severe attacks which have been an even worse case of optic neuritis, numbness that practically took over my whole body couldn't even dress my self, barley could walk and it was very hard to breath at times when my chest would get to numb. It kept going strong for about a month before it slowly started to go away. Which it never fully went away, it got way better but feet hands and one of my arms still have different levels of numbness in them. There were others flare ups to along the way.
It's definitely a journey with a long bumpy sometimes terrifying road ahead! But, I always say it could be worse, Because it could be! I try to be very optimistic and have a good sense of humor about things and stay as far away from stress as I can. I also have a good support system. It does get tough especially with 3 kids under the age of 6 running around depending on their mommy. I just take it one day at a time pray to god I make it through the rough times with as much strength and grace as possible and thank god for the good times that I still have. It's my life and im not gonna let anything stop me for living as long as I still have a breath left in side of me !!!
Does your employer provide workplace accommodations due to your MS?