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It is strange, but MS has helped my marriage, of 30 years. I used to be totally active, I would go three places a day, and the house was just a place for me to sleep and take a shower. My husband is a home body, he just works, and he is career minded so that is great for me now. My husband never went anywhere with me, hardly, we used to go diving but after a while, I could not walk down to the beach with my tanks on. I love being in the water though, because it is weightless and relieves my stress. I have had MS for years but they could not diagnose, I went from high heels to crocks, and tennis shoes. When I was a teacher, the stress was so bad from the fifth graders that my words were not coming out right, my sentences were jumbled. I know that is a sign of MS. The kids thought it was funny, but it did not happen often. Now I just turned 60 years old and I try to walk my dog everyday, but this week it is raining. My husband said, I did not have to work anymore. When I worked, he never saw me, I was always out and about, and then waking up at 5 a.m. I had to go to sleep early every night. I would come home from teaching, and my feet were hurting so bad, that I could hardly move, so I had to lay down. Now, I am waking up about 6 times in the night and sleep until 10:00 a.m. and then I feel better. I have my coffee, and my shake and try to clean the house. I have secondary ms, or primary, but it is not so bad yet. I am trying to keep a good attitude, and keep the house clean. Anyway, my husband is happy, because I am finally there for him, all the time, because leaving the house is a huge effort for me, but I feel better when I do. I feel better when I walk. Life is still good, so I wanted to share some positive with you. I am so proud of all of you, you are all heroes.

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  • Bobbi
    10 months ago

    I just read your post and felt like I could relate to you so much! I also was a very active person. I was on the go all the time, teaching special education, taking my own 2 kids here and there all the time. I also did a great deal of work with the university, inservicing and training teachers and traveling, making presentations.
    Now I am home all the time, some days I want to go out but I just can’t get up the energy to get ready. I’m on disability retirement after teaching for 25 years.
    My husband and I try to spend quality time together but his job requires him to travel 2-3 days a week most of the time. Now our boys are grown so I take care of the house and cook etc.

  • TBIRDFLY author
    10 months ago

    Hi Bobbi, thank you for your reply. We are adapting very well. I am so proud of us. I am reading more now and my new passions are writing, cooking and gardening. I think it is important that we still have goals. I think people need more courage and enthusiasm in this life. I know it is hard for us because of the motivation factor, and pain, but to get through this journey, we are the perfect people to help others. It sounds like you had a wonderful long career as a teacher, that is such a proud profession, I am sure you helped a lot of children. Love Tbird

  • Donna Steigleder moderator
    11 months ago

    @tbirdfly Thanks for sharing the positive side of MS with us today. Your renewed relationship with your husband is indeed an upside to having to stay home more. Glad he’s someone you want to be with still after all these years and that you’re growing better together for the future. Donna Steigleder, Moderator

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