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Bike MS – My first time riding! MS for 13 years!

  • By Debbie – Our Life Uncensored

    First of all, a big congrats on the big 10,000! That’s fantastic!

    I would LOVE some help fundraising! Last year my husband did the Bike MS and I said I never would be able to do it. I was diagnosed in October of 1999 and I had been using my cane for the last two years, since I progressed after each of my two children. Well, some medication changes and I am no longer using my cane! I started training for it after I “got my legs back”. I am up to 24 miles! I signed up to do 35 miles the first day and 15 the second. It has been a long hard road for us the past few years. Our son was born early (emergency c-section) and had developmental delays. He was diagnosed with Sensory Processing Disorder and ADD as well as numerous delays. It has been hard taking care of a child with special needs when I have a chronic illness, but I have a wonderful husband and great support system of family and friends.

    My goal for doing the Bike MS is to not only to raise money, but to show our children that no matter what is different about you, you can do ANYTHING! Sometimes it may be different than the “norm” or it may take a lot longer, but it can be done. The motto in our house is “Never say ‘I can’t’. Just ask ‘How can I?'”.

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  • By Laura Kolaczkowski

    Debbie –  I often look at people riding bikes around here and wonder if I can still do it… I know they say you never forget this skill but my body might not want to cooperate.  Your biking might just give me the nerve to saddle up and give it a try, again.  with my luck lately, I think I would need to find a helmet, first.  Good luck with the ride! Laura

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  • By Debbie – Our Life Uncensored

    Thanks Laura! You can definitely do it! Even if it is just around the block. I started with only a few blocks and slowly worked my way up.  It was hard for me to get and keep my balance when I started riding. I’m still a bit uneasy and am definitely more comfortable on a trail with no one around! Get a good helmet, a decent bike and give it a try! It always feels good to “reclaim” something you thought MS took away!!!

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  • By Mike T

    Debbie, congratulations on all you’ve achieved and for being a role model for your children and an inspiration to us all. As for fund raising help I can tell you that following the tips on the Bike MS site is worthwhile. Use Facebook and email to solicit donations and ask friends and family to share your message. Before I was diagnosed March ’08 my company had a team of 4-5 riders who raised about $3,000. Since my diagnosis the team has averaged 50 riders and raised almost $400,000. I became the “face” of MS and and through that created awareness and an opportunity to discuss MS in the work place. As a result we learned of spouses, parents, siblings, cousins, in-laws and unfortunately children living with MS.

    Also attach a link to your Bike MS page on all your correspondence, you never know who just might make a donation. That includes message board posts! Good luck, Mike

    p.s. what medication change brought on the positive results?

     

     

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  • By Cathy Chester Moderator

    My friend just bought me a new bicycle!  I can only ride on flat surfaces, but I love it.  For Bike MS, I assume it goes over hills as well, correct?  I wish I could do one; I’d feel proud of myself.  Especially cause I’m 54!

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  • By Debbie – Our Life Uncensored

    Thanks everyone for the support!

    Mike, I started taking Ampyra. At first the pain in my legs was worse for about a month or so, but because I was using muscles I haven’t used in ages! After my body became acclimated to it’s newfound strength, the pain went away. I still have aches and pains, but NOTHING compared to how I was before.

    Cathy, I am 40 and was dx’d when I was 26. You can do anything you put your mind to! You may need to start training now for next year, but it’s possible! I have trouble with the slightest incline as well, my legs will seize up and cramp horribly. They still do, but the cramping gets less and less and for shorter each time I ride. I get into a rhythm of pedal, coast, pedal, coast. Plus, the best thing about the MS Ride is just that – its a ride not a race! Take as many breaks as you need and there are rest stations along the way. I am so excited to cross the finish line. I don’t care how long it takes, or even if I have to do a shorter ride than my goal. As long as I get out there and try. Remember, don’t say I can’t – say how can I?

    We started a family vlog since all members of our family have chronic illnesses, except our daughter (even the dog does!). Its about us living life the way it works for us! http://www.youtube.com/ourlifeuncensored.com  If you like it, hit the Subscribe button

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  • By Cathy Chester Moderator

    Debbie, I tried your link but it didn’t work.  Perhaps you could re-post?

    Thanks for the marvelous advice on biking.  Wish I had someone to bike with.  My husband’s back prevents him from biking.

    Best to you always,

    Cathy

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  • By Debbie – Our Life Uncensored

    That was strange that the link didn’t work! Here it is again:

    http://www.youtube.com/ourlifeuncensored

    You can look into a recumbent bike for your husband. Those are where you are sitting, have a backrest and your legs are straight out in front of you. It is great for people who have bad backs, weak legs, etc. There are also recumbent bikes where you use your arms to “pedal”, which are great for people in wheelchairs or who have minimal leg strength. Recumbent bikes are VERY expensive, but you can find some on places like eBay or Craigslist for cheaper. I have also seen some cheaper ones on Walmart online and such. That would be a good option so if you don’t like it, you can resell it and not be out too much money. Check with local bike stores to see if they rent recumbent bikes. There are so many options. Like I always say…never say I can’t, say how can I?!

    Thanks for the support,

    Debbie

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