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Is it all in my head?

  • By daisysmiles

    Quick background, August 2017 I went numb from the waist to my toes… Lesion found… Termed it transvers myelitis… Tested positive oligoclonal bands in spinal fluid. Fast forward to July 2018 legs gave way completely and I fell. I’ve had to use the walker intermittently during this time. Fast forward to this week I’m having a very difficult time speaking it’s like I’m choking on my words, going on five days. MRI from November 2018 are normal except for lesion on spine. My doctors are at Mt Sinai and they said I need therapy that there’s no medical connection to these symptoms and that I’m manifesting it. They even suggested anti anxiety pills. I don’t feel like I’m at all psychosomatic and these symptoms are very real to me. Yet these are supposed to be the best doctors. I don’t know what to do.

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  • By Donna Steigleder Moderator

    @daisysmiles
    It’s never easy when you feel like no one listens or tries to understand you. That hurts. I know you must feel lonely and confused right now. Often making a neurological diagnosis is very difficult. Symptoms and evidence to support them can be elusive. Plus just because you are at a great hospital doesn’t mean that everyone there is equally great or that they get it right every time. However, I’m afraid; this is your call based on your gut. Is there enough stress in your life that it could be causing an impact on your nervous system? If so, they could have a point in there being a psychological factor. If not, then maybe not. We cannot give you medical advice because your situation is uniquely yours but listen to your instincts. You know your body. Keep asking questions if the answers you get don’t make sense. Good luck. We’re here if you need more information. Donna Steigleder

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  • By Hope22

    My primary care doc said the same to me more or less. I asked if he would say the same to his wife. Then he explained that patients look on the internet and that sometimes causes a lot of stress making it difficult to diagnose a condition.

    I moved on to a neurologist who is running the tests.

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