I’m trying to find a good neurologist and/or MS specialists in the Dallas or Tyler, TX areas. I had a great physician, but he left his practice in order to return to a research capacity. I’ve gone to a couple of other neurologists since then and don’t feel that they listen or understand the challenges of living with MS. Any suggestions? Thanks!
Sherri, I feel with you the frustration of finding an MS Specialist. I feel the same, my current neurologist does not specialize in MS. I like him and actually chose him over a doc who does specialize. The doctor who specialized In MS was very aloof and passed me to a doctor assistant who was surly, rude and uncaring. She immediately gave me the impression that I was a bother. When I asked her questions about some MS symptoms she sighed and said, ask a urologist, or any other doctor she could pass me off too. I knew this wouldn’t work for me.
I chose another neuro who was in the same group. We don’t have a lot of neurologists here and particularly not in my town.
Keep looking for a neuro that you feel comfy with. I think I’ll be doing the same. My neuro is ‘okay’ but seems set on treating every symptom chemically. I never have had PT, or any other treatments aside from being medicated for everything. Medications bring their own challenges and I have the misfortune of being ultra sensitive to them, which mostly brings looks of skepticism and raised eyebrows.
Diane, Thanks for your encouraging words. The neuro I’m with now is also ‘okay’, but he does not specialize in MS. I feel like I only have his attention for the first five minutes of the appointment. In that time he makes his decision on what meds he’s going to give me & doesn’t really listen to anything else I say. He then goes into this long medical terminology filled explanation of why this new med is going to solve the problems. With my cognitive problems, it’s sometimes hard enough for me to follow simple things, let alone that. Once he’s done dazzling me with his brilliance, he leaves the room as quickly as he can.
I also live in an area that has very few neurologist. I have to drive over an hour into Dallas or Tyler. I shouldn’t complain; I am so much better off than many others. Sometimes the frustration just gets the better of me!
I wish you luck in your continued search. I know there are good neuros out there – we just have to find them!
Sherri, Looks like our experience with neuros is pretty much the same. Okay to complain anytime; you aren’t really complaining, you are just stating how it is. Sure, others have it worse, but that doesn’t mean our problems are not important too. Actually these neuros are our lifeline and we deserve more time. Docs in general have little time to give and sadly with the new healthcare act, it will probably get worse.
The sad thing about the Healthcare act is that many people who really need help won’t get it. Most who are getting the ‘free’ healthcare are getting at the expense of others. It’s the middle class who is supposed to bear the burden, but they can’t afford the new policies and can’t go back to the old.
The people who have no healthcare essentially go on Medicaid and that is the lowest of the low in healthcare. The middleclass doesn’t really have the means to afford the new policies which cost more and provide less.
It’s really a sad situation all around and will effect healthcare in the US for a long time. It’s a big worry.
Even though I’m on Medicare, it is getting more and more difficult to find doctors who take it and I’m dreading what my new deductible will be.
Too bad the people who designed this new law didn’t work to find something the uninsured could have.
Oh heck, sorry to complain; it’s going to be what it’s going to be and we all have to figure out how to get the best care we can.
I just wanted to share for others who may not be aware…the Consortium of MS Centers has a database of MS specialty clinics in the US. They can be searched at http://www.mscare.org/search/custom.asp?id=881 . Also, contact the National MS Society to ask for recommendations in your area.
Yeah, another doctor I saw recently told me the same thing as another one: “Maybe I’m not the doctor for you”. I’m getting to the point where I just don’t want to see any doctors anymore. I can’t help it that I’m super pro-active in my MS care, and when I say something else is going on that is not MS related, I mean it. I’m starting to think that I’ve been doctor blacklisted or something….. We have a MS Center here but its over 100 miles away. Kinda sucks but what can you do?