By Sarah H.
My name is Sarah. About a year ago, I became seriously involved with my partner Jess, who was diagnosed with relapsing-remitting MS in 2001. She (very fortunately) has had only mild progression of her condition and had been in full remission without daily medication for almost three years.
Fast forward to a couple of months ago – Jess started heading towards relapse, and now is in full blown relapse to the point of no longer being able to work. Physically she’s pretty stable, but she is having a lot of cognitive symptoms that are really taking a toll on me and all of our family relationships (we have a three year old daughter). This is my first really concrete experience with MS, though I have known some other folks who dealt with the disease, and to be honest I am scared out of my mind….
How do you cope with this on a daily basis? I love my partner and I want to care for her in the best way I can, but I feel like I’m wandering in a dark forest without a flashlight…I just keep running into trees. She has a new neurologist and I am struggling to find a local (or any) group of spouses who might be able to give me some insight into how we can still live our lives as a family without letting the disease conquer us all…
Any insights would be appreciated. Cheers 🙂