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severe burning pain

  • By ecobb27

    Has anyone else experienced a severe burning sensation? Mine happens in my legs. It feels like I’m burning from the inside out. It comes on suddenly lasts about 5 minutes, it is from my butt down to my toes. It feels like my leg is in a campfire. Unfortunately when this happens my other leg has severe pain and cramps up and freezes like a statue. I have been lucky enough that the 5 or 6 times it has happened I have something to lean on or someone to help me as I can[t use either leg. The burning is extremely painful and very draining.

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    • By Mike H

      Severe burning, yes!…..feet, up legs to above my knees…always there. Never stops. Driving me crazy! My neuro prescribed Trileptil (actually the generic oxcarbazepine ) 600mg every 8 hours. It knocks it down somewhat. If I go past the 8 hours (something do, not realizing) the burn comes back hard & heavy. Been taking this for a couple of years now. Wish there was something more to take but I guess not. Unless anyone else knows of anything? Oh, forgot to mention… enters into my “glutes ” when I sit for more than 5 minutes. Extremely uncomfortable!

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    • By Dpm209

      Yes I too have the intense burning pain. It feels like my legs are on fire, usually happens at night when I am at rest, and lasts, to various degrees, all night. It is in both legs, from my knees down, especially in my calves. My neurologist has prescribed Gabapentin, which I take 4x a day, 100mg. each. It helps somewhat.

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  • By Erin Rush Moderator

    I am so sorry you didn’t get any replies the first time around, ecobb27! I know some of our members have described burning sensations in their limbs. I know two of our contributors deal with burning pain and write about it from time to time. Here is a recent piece by Devin that discusses the various forms of MS pain he has dealt with, including burning — https://multiplesclerosis.net/living-with-ms/the-torture-that-is-chronic-pain/. One of our other contributors, Ashely, also discusses her various MS issues here — https://multiplesclerosis.net/living-with-ms/whats-like/. If you haven’t already discussed this with your physician, please do. Your neurologist may be able to help you come up with some treatment options. I am sorry you are having to deal with this MS symptom and I do hope you are able to get some relief very, very soon. Thank you for reaching out! Best, Erin, MultipleSclerosis.net Team Member.

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  • By Jesgos123

    I have burning pain like you are talking about, most nights while I am laying in bed. But my burning pain is ALWAYS on the front of my right thigh. I have mentioned it to my Neurologist and my pain doctor, they both just claim that it is my MS and nerve damage. But I DO, FEEL YOUR PAIN

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  • By Jesgos123

    I have burning pain like you are talking about, most nights while I am laying in bed. But my burning pain is ALWAYS on the front of my right thigh. I have mentioned it to my Neurologist and my pain doctor, they both just claim that it is my MS and nerve damage. But I DO, FEEL YOUR PAIN

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    • By Mike H

      Ask about the Trileptil. (Oxcarbazepine) I know it is a seizure medication but my neurologist knew something I didn’t. He started me on a lighter dose & I had to work my way up to where I’m at now with the dosage. This may help some of you….maybe, hopefully.

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    • By Erin Rush Moderator

      Thank you for your suggestion, Mike H! That’s some great out-of-the-box thinking on the part of your neurologist! Best, Erin, MultipleSclerosis.net Team Member.

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    • By stacey1965

      When you hear that other people have the same pain , you don’t feel alone . My right thigh also have the burning sensation. The pain is so bad I can’t touch or even but my blanket over it. It’s happen to me more here lately because I have broken my left leg and using the right leg more.

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  • By pennyhasms

    Hello Im Penny I too have the burning my doc says its from my nerves being damaged , I feel like the insides of my legs calves are internally on fire down deep

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  • By Dorry

    I am sorry for all of you experiencing this burning sensation in your legs/calves. But so very comforting to know I am not MAD. I explained these symptoms to my G.P. and she just dismissed this as my osteoarthritis. I have been having this burning in my legs for over 2 years. it is now getting me down as I know it is not normal. First I thought it was having my laptop on my lap and it is hot. Now I have a laptop desk with fan and computer on top. But still the burning is strong.
    My legs feel as if they are on FIRE. A lot of the time the burning is there and at night also. I now cannot walk properly. My legs are extremely tired/exhausted after 5 minutes standing in the kitchen. I have to sit down most of the time. My legs are so very weak and MEGA swollen. My G.P. does nothing. I see my G.P. once a year for an arthritis review. Now I am going to ask for a second opinion from a neurologist. They have to take this burning sensation seriously. I also have weird sensations down my thighs and legs. My G.P. asks me to explain it and I can’t so she dismisses this as arthritis. I don’t feel so alone now knowing this is REAL. Not all in my mind. When one has strange symptoms it is good to have this blog outlet to release our concerns and fears and somehow one feels better not being so alone. Thank you for sharing and for this blog

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  • By stacey1965

    Yes I do, the burning pain is so severe I can’t touch it or even put my blanket over it. It may last a hour or two and go away as quick as it came . It had happens every night for a week now. I fell and broke my left leg and having to use it a lot more and it seems that it started the same time I broke my left leg.

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  • By ZIN22

    I have had severe burning from my knees down to my feet for the last 15 years 24/7. It has never changed until 2 years ago I got one of those electrical stimulaters put in. The theory is that it will block the pain signal from going to your brain and it actually made things better for awhile. As time went on my burning became even worse and now actually starts @ my upper thighs. The craziest thing is when my batteries on that implanted unit go dead I actually can tell immediately because I feel the most PAIN of all. So that means the device works correct. Well yes it actually does but the kicker is this….say my pain was a 6 and I have the unit installed and after 1 year my pain is now a 8 and it is hurting higher up. When the batteries go dead my pain reaches a 10 and once charged I go back to an 8, but I originally started with a 6 for 13 years it never changed. Does that make sense. I call my pain a 10 because when transferring out of my wheelchair and I attempt to stand the pain is great enough that it causes my knees to buckle due to pain. OK enough of my story… The bottom line is YES I know exactly how you feel and I need to know how to fix it because my grand daughters come up on my lap and when they get off my lap the pain is insane. Of course they will never hear me complain…

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    • By stacey1965

      Sorry you have to deal with so much pain. I have a lot of pain and short term memory loss. I stay positive and stay busy. I fell and dealing with a broken leg and surgery from it. My balance is off also. I’m thankful that I can walk and do things that I really like to do. I will pray that you will have some relief from your pain. The burning sensation is terrible and painful.

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