stories
By Boycoy18 - March 28, 2017
...I live with my partner that has ms I want learn more about ms. Sign up for emails from MultipleSclerosis.net: Thanks! You're all set! Good news - you're already subscribed! Need help? Let us know at contact@MultipleSclerosis.net. Something's not right... Try again or let us know at contact@MultipleSclerosis.net...

caregiver
By Donna Steigleder - March 26, 2017
...I guess most of you who have read my column in the past think I’ve stopped writing.  I have to admit that I’ve considered whether I should do that because my time to do anything at all these days is so limited but the publishers of this site are so kind and they have asked me to share my stories whenever I get the opportunity so I’ll keep doing so for as long as I can. Unexpected change See, here’s what’s happened.  As you may recall...

caregiver
By Donna Steigleder - September 13, 2016
... needs, most of the time patients don’t call out because they know it’s an inconvenience and frankly, the caregivers don’t really have time to do those when caring for so many people. That’s one reason why most people prefer...

caregiver
By Donna Steigleder - August 14, 2016
... diagnosis, there is always a learning curve required before you find the right treatment plan. So, what has this got to do with being an MS caregiver? Everything. Being a full-time caregiver with only yourself and the one receiving... care living in the house, when the caregiver is “going downhill,” then the one being cared for also has to be considered. Caregivers do not have the luxury of just thinking of their own needs (basically like being a parent...

caregiver
By Donna Steigleder - June 22, 2016
...Every time Lynn starts acting differently for several days in a row, I start to wonder if it means there’s some new problem we have to face. MS can affect so many different body parts and functions that I just never know if a new problem is MS or something else. For instance, Lynn has been sleeping a lot. He talked to his dietitian who thought he needed more protein in his diet; so, we added two protein shakes a day. He loves them and he...

caregiver
By Donna Steigleder - June 12, 2016
... that most people who are not full time caregivers are amazed at what I do and how I manage but that just means I know stuff and I have abilities and that God blessed me with a servant’s heart that allows me to meet these challenges... without quitting. It does not make me an angel. I bet if you’re a caregiver, you’ve been called an angel a time or two, also. It’s a compliment that is intended to reward you for all your hard work, and I admit, it sounds...

caregiver
By Donna Steigleder - May 30, 2016
...I always have guilt feelings when I write about any negative emotions I feel in being a caregiver but the fact is, I have them and I expect most other caregivers have them as well. It doesn’t mean we don’t love the person we... too much for the caregiver to handle (and that’s not something any of us want to have happen). So, you would think having Lynn with me all the time for companionship, I wouldn’t be lonely but I am at times. Lynn and I have...

caregiver
By Donna Steigleder - December 19, 2015
...I get a lot of offers to help; some sincere and others just being polite. What I have found is that people want to help but they don’t know how and realistically, many have their own problems and challenges so they can’t help in a way that involves time or money.  While I really could use the help, I don’t want to put anyone out so I usually don’t ask BUT, if you ask me if you can do something for us, I may very well say, “yes.” Here are some...

caregiver
By Donna Steigleder - December 7, 2015
... that are cherished events and a great way to keep those social connections. However, participating can be a challenge and a heartbreak for those who are mobility challenged and their caregivers. If you are having an event... and want to invite someone who is a caregiver or gets around in a wheelchair or uses other equipment for stability, please consider the following: Building Access: We don’t do steps. Even a simple 1-2 inch elevation can create...

caregiver
By Donna Steigleder - November 10, 2015
... of value and I have my own needs and I have a right to have those needs met. As a parent, I learned to put the needs of others who cannot care for themselves, before my own needs. I learned that as a caregiver, I can influence...

caregiver
By Donna Steigleder - March 27, 2016
... have four hours for a caregiver so that’s another $200/day for night time. Four hundred dollars a day times seven days; well, that’s a lot of money ($2800) and we don’t qualify for assistance or help from insurance... to be done. I didn’t have to constantly listen out for, “Hey, Sweetie. Can you come here for a minute?” and we all know, it’s never just a minute. Caregivers can’t just lie back and heal; just like Moms or Dads can’t. When...

caregiver
By Donna Steigleder - September 2, 2015
...I’m starting my “staycation” today. You know the kind; where you vacation at home so you can get things done that you never have time to do when you’re working. We normally vacation at the beach each year with our children but when the time came this year to pay off the rental, we realized that though we had some good times when we were there, for Lynn, most of the experience was exchanging one bedroom view for another with a lot of recovery time...

caregiver
By Donna Steigleder - September 29, 2015
...My world is very structured. I have a routine for almost everything so that I save time and don’t forget things. When my routine is in place and flowing, life is hard but it’s manageable. HOWEVER, let a little crisis get thrown in and it can tip me over the edge. I still work a full time job and am a Director of a department. I am fortunate that my supervisor allows me to work from home most of the time and have flexible hours. She knows I’ll get...

caregiver
By Donna Steigleder - April 4, 2015
...In the day to day activities of living and doing what is necessary just to get by, I often get into a rut and if I’m not careful, start feeling overwhelmed by all I need to do and all I want to do but can’t because time or obligations just don’t allow for it. I am often my own worst enemy because I struggle to do everything – what I want and what I need both and it’s just not possible to do it all…but I still try. I know I need to be realistic...