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David posted a new activity comment 15 hours, 6 minutes ago

Hi again. Originally was diagnosed as RRMS. I was put on Debit. I lost my 2 yr. Grant paying for it. I couldn’t afford it so I went off meds. Then I lost my MS Neurologist as well. I just gave up. Five or six years later I got very MS sick. Then they found a large MS lesionon my spine. I had spine surgery. Afterward my surgeon told me I get to…

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vvxjr9 posted a new activity comment 22 hours, 52 minutes ago

You are the same as me so why was your doctor putting you on medications for another condition. I had to go off my SPMS medication because I lost my insurance. I am looking into taking an oral medication instead of infusion. Not sure which one, so let me know what you get prescribed with, as I might try to get that too when I get another neurologist.

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teresaallen replied to the topic What is everyone's take on Tysabri? in the forum Treatment 1 day, 3 hours ago

Hi
I have been on tysabri for 6 years, and am JCV positive. My bloods are relative low risk of PML, so I am continuing with it. I have no side effects and have been relapse free for the whole duration (although my disability has increased a little). With looking at the other DMDs around it is by far the best in comparison when looking at…

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Rodger commented on the post, I Don’t Drive Anymore 1 day, 13 hours ago

Thanks Dianne I live in New Zealand and our MS Society can be helpful but our problem is bigger than them and I don’t won’t to labour than they can do. I do know how we can help ourselves and it is working. Still it is hard road but like I have written we still love each other and nothing can be bigger than that.

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Dianne Scott commented on the post, I Don’t Drive Anymore 1 day, 15 hours ago

@rodger,

The circumstances you’ve described are hard to hear so I know they are even more difficult in which to exist.

The community is always here for you and by sharing your hardship here, I would at the least like to encourage you to consider contactng the below resources for possible financial assistance (for home accessibilty to help…

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David posted a new activity comment 1 day, 15 hours ago

Do mean my current diagnosis. Sorry I’m not sure what you’re referring to. Could you be more specific? Thanks for your comment and inquiring.

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Rodger commented on the post, I Don’t Drive Anymore 1 day, 16 hours ago

As well as housing problems I also live with my wife who has a Complicated PTSD from a troubled early life (until she was 22). This has implicit on her to go out much and it’s difficult for her get me out so I can’t help her as much as I could and that is frustrated me. But I love her very much and that has kept us going for 39 years so far.