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I completely understand what you are relaying in this article. I constantly go through the same thing with my doctor and it really frustrates me. I am constantly in pain, cognitive issues, etc. I explain to her everytime that there is no particular time that I am feeling fantastic for a week or month. The syptoms never go away, I have had MS for…
Absolutely love your article, it really points out how strong we all must be each day. I honestly tell myself everyday that my MS will not win today. I also understand when those symptoms come on without warning and learning to listen to them. Every morning I wake up I do my best to complete tasks, even if my toothbrush feels like it weighs ten…
Don’t get me wrong- i’m not against hope. I exercise everyday in hope that it will prevent me from tripping over the cat, face planting in my driveway and breaking a hip.
I have definitely learned to “adjust my hopes accordingly” in the last year since diagnosis. I forgive myself a lot now. I play my MS card as much as I need to. Someone here said it awhile back, ‘it’s not an excuse it’s my reality’.
I understand what you have said and agree with it but it makes the assumption that the collective published information about MS is completely correct. From what I have found out personally, the ‘powers that be’ are keeping us in the dark, probably for money reasons. This means that it is a huge scam. The only way, therefore to be at peace, is to…
Good article. I so relate to being unable to get comfortable. Very often I try to ignore it. I toss and turn for hours, take a shower, take a Tramadol. Finally I get 3 hours sleep, then up at 6 to start a new day. Maybe a nap later, maybe not. Yes, people do think I am always resting. I don’t try to explain, it’s futile. Only someone with MS kno…
Another great article, Devin, thank you! I can only remember being totally comfortable twice in the past several years. Both times I actually wondered if I had died! Lol-(sort of).
Pretty good, but freezing.
Zeus73. YOU nailed it. Devin does have a talent for expressing himself. I read something you write Deving and I go…Oh yeah, that’s it. I then steal your observation or description to use for myself!!
I too have an awful time talking about myself and my MS. Angst is polite. I am effing angry a lot.
I do stand often. I can deal with my…
Better than a month ago. Why? I stopped taking Aubagio and my Lipitor.
My dog seems to sense my altered abilities as well. It so nice to have a faithful, unquestioning friend that also loves unconditionally.
You are SO good at this sharing thing. So accurate, concise, and your style though always informational, is also simultaneously comforting. You help me see the smaller picture when I try to sweepingly generalize as I try to avoid focusing on what I can’t fix. In the process, I cheat myself of comfort.
I take prescription drug Baclofen for spasms. When that doesn’t work, I take 400 mg of the mineral magnesium.
Doing pretty well.😊
Oh my, can I relate to this article. I’ve actually had family say “you can come right? You’ve been resting all day.”
What I hate most are the painful spasms. I get NO rest. Thank you for the understanding I felt in this article. I am not alone.