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AnywhereOutOfThisWorld posted an update 3 hours, 16 minutes ago
Quote of the day: Attempt the end, and never stand to doubt. Nothing’s so hard but search will find it out. – Robert Herrick Now listening to a great song released in January of this year by Sheffield, England rock icons ‘Bring Me The Horizon’ titled “In The Dark” & to hear it, click here: https://www.youtube.com/watch?v=Thazgd1HFus. Lyrics: In…
David posted a new activity comment 15 hours, 6 minutes ago
Hi again. Originally was diagnosed as RRMS. I was put on Debit. I lost my 2 yr. Grant paying for it. I couldn’t afford it so I went off meds. Then I lost my MS Neurologist as well. I just gave up. Five or six years later I got very MS sick. Then they found a large MS lesionon my spine. I had spine surgery. Afterward my surgeon told me I get to…
georgewilson01477 liked Pediatric Multiple Sclerosis; Can Children Get MS? 21 hours, 12 minutes ago
georgewilson01477 liked Pediatric Multiple Sclerosis; Can Children Get MS? 21 hours, 12 minutes ago
vvxjr9 posted a new activity comment 22 hours, 52 minutes ago
You are the same as me so why was your doctor putting you on medications for another condition. I had to go off my SPMS medication because I lost my insurance. I am looking into taking an oral medication instead of infusion. Not sure which one, so let me know what you get prescribed with, as I might try to get that too when I get another neurologist.
Devin Garlit wrote a new article 1 day, 1 hour ago
AnywhereOutOfThisWorld posted an update 1 day, 3 hours ago
Quote of the day: Finance, like time, devours its own children. – Honoré de Balzac Now listening to an awesome by Sulphur Springs, Texas progressive rock band ‘Fair To Midland’ (disbanded in 2012) titled “An Honest Conman” & to hear it and read its lyrics, click here: https://www.youtube.com/watch?v=oGgEtuZ54pc. The overall meaning of this song…
shon65 commented on the post, A New Symptom: The Crow Claw 1 day, 3 hours ago
Same here! Claw is shorter duration, but thought I was the only one who couldn’t let go.
teresaallen replied to the topic What is everyone's take on Tysabri? in the forum Treatment 1 day, 3 hours ago
Hi
I have been on tysabri for 6 years, and am JCV positive. My bloods are relative low risk of PML, so I am continuing with it. I have no side effects and have been relapse free for the whole duration (although my disability has increased a little). With looking at the other DMDs around it is by far the best in comparison when looking at…
Bkboo commented on the post, My Mind Serenades Me with Memories of Life Before MS 1 day, 9 hours ago
Right!
Rodger commented on the post, I Don’t Drive Anymore 1 day, 13 hours ago
Thanks Dianne I live in New Zealand and our MS Society can be helpful but our problem is bigger than them and I don’t won’t to labour than they can do. I do know how we can help ourselves and it is working. Still it is hard road but like I have written we still love each other and nothing can be bigger than that.
Dianne Scott commented on the post, My Mind Serenades Me with Memories of Life Before MS 1 day, 15 hours ago
Hello, @maxie, and thank you so much for your very kind words as well as sharing your thoughts and personal experience relative to the article’s subject – in which I thoroughly enjoyed reading. Thank you for being a part of the community and, please, feel free to submit your story here also.
Best wishes,
Dianne♡
Dianne Scott commented on the post, My Mind Serenades Me with Memories of Life Before MS 1 day, 15 hours ago
I am pleased to hear that you enjoyed the article and that it resonated with you. I am happy to hear that you’re trying (trying, trying, …) to create new memories – because that means you’ve not given up. That means you have not SUCcumbed to MS, but instead have chosen to OVERcome. It cannot have EVERYthing, right?
Dianne Scott commented on the post, I Don’t Drive Anymore 1 day, 15 hours ago
The circumstances you’ve described are hard to hear so I know they are even more difficult in which to exist.
The community is always here for you and by sharing your hardship here, I would at the least like to encourage you to consider contactng the below resources for possible financial assistance (for home accessibilty to help…
David posted a new activity comment 1 day, 15 hours ago
Do mean my current diagnosis. Sorry I’m not sure what you’re referring to. Could you be more specific? Thanks for your comment and inquiring.
Rodger commented on the post, I Don’t Drive Anymore 1 day, 16 hours ago
As well as housing problems I also live with my wife who has a Complicated PTSD from a troubled early life (until she was 22). This has implicit on her to go out much and it’s difficult for her get me out so I can’t help her as much as I could and that is frustrated me. But I love her very much and that has kept us going for 39 years so far.
PS98107 commented on the post, A New Symptom: The Crow Claw 1 day, 18 hours ago
Wow, those are terrible symptoms and as it happens, those two symptomsare also stroke symptoms so I hope that person was seen by a neurologist about them to rule out stroke.
Dianne Scott commented on the post, My Mind Serenades Me with Memories of Life Before MS 1 day, 19 hours ago
Hi @yoshitail9,
Oh, I can understand that.. I think, at least at this juncture for me, the memories surrounding my children – particularly my first – and so very many photographs from the past help me.
Thanks so much for reading as well as complimenting my writing – I am immensely appreciative of both!
Warmly,
Dianne ♡
Dianne Scott commented on the post, My Mind Serenades Me with Memories of Life Before MS 1 day, 19 hours ago
@vvxjr9 –
I am certain that Mr. Redford would find your comment extremely complimentary! As for me, thanks for reading and liking the article’s choice of song theme! ☺ Take care –
Dianne ♡
Dianne Scott commented on the post, My Mind Serenades Me with Memories of Life Before MS 1 day, 19 hours ago
@lizd –
I am so happy that you not only read, but enjoyed the article and I truly appreciate your kind feedback! Thanks so much.. Reciprocating your warm wishes –
Dianne♡
