Spotlight: Temperature and Weather
Whether it's the summer heat or the winter cold, temperature and weather can have a BIG impact on many living with MS. We want to hear from you! Does the heat or cold affect you more? Or, do you struggle with both? How do you manage temperature and weather? Join the conversation here and let us know!
I think both affect me but summer I get so dizzy and off balanced especially if it's just really hot and humid but winter I get cold I'll dress warmer and be okay go figure
Tiffany-MS-MOM, the humidity and the heat can be so hard to deal with, but the cold can have its own unique impact as well!
,Yes that's how My body temperature is during summer and winter, I go through the same I over heat, and I can't take the heat I Get 😷 and in the winter ☃️ I have to stay warm 🥵 to maintain a certain body temperature. It's amazing how it works out for Us.
The heat is the worst thing for me. I live in Maryland and in the summer the humidity is terrible. I try to stay indoors if I can. I go to work before the temps are extremely high and go straight to the garage and turn to the air on in the car when I leave.
I can deal with the cold so much better.I live in ghetto New Jersey & people don’t understand and of course get all pissed off that I only go out at night in the summer. OH WELL 🖕 em. I feel you though on the nighttime being much better to tolerate. However, in my dumpster state on the east coast; it’s a 50/50 too. Sometimes the night becomes even more humid. I’m like bro! WTF! I just can’t win. I hate having this bc people are like “oh you look great!” *me mentally stabbing them in the face* I honestly wish that every single person on this earth (who isn’t already sick with an “invisible illness”), had to experience what we do for like 6 months. Then please come back at bitch at me about how I live my life. People suck I’m back, commenting from ghetto New Jersey again. I also prefer going out at night bc there’s generally less traffic and things are usually more quiet and less over stimulating. Always a huge plus
So, does this sound like MS-related fatigue and mood swings, or just me? I have RRMS, and work at a historic park, where I dress in 19th century clothing for work. I do tours and school programs in non-airconditioned buildings. I find that numbness and pain are more common with cold, but after working in the heat, I come home and am tired enough to want a nap, and incredibly irritable -- yelling at my kid over little stuff, nearly bursting into tears. Just me, dehydration, or MS??
Oh yes MS related because of the heat, the clothes,no Nap, and You 💞 don't mean to take it out on your child. You might need another Job Both!!! M.S. is very fickle! First thing my Neurologist did was put me on an antidepressant! LIFE SAVER!!! I was military when diagnosed, so the let me go! I tried to work for about 1 year, 2nd shift, but whenever I wasn't working, I was sleeping! I feel like working and doing life was way to complicated. I've figured out that I need to schedule ANYTHING AND EVERYTHING at least 24hrs in advance! Then I think about the duration of time, Is there a place to stay cool, and is there readily available water? Then, I say a prayer, and knowing God's got this, I go and have fun! But, I also make sure I have nothing to do the next day, to recoup.
Easy peasy...🙄, yeah right!
So, I'm in Central Texas... so I don't think I've ever dealt with the kind of COLD that many others deal with that have MS. So I can't say that it really affects me all that much. I really enjoy the cooler weather.... Mind you, I get cold if it's 70 degrees or below.
But I do deal with the extreme heat a lot, especially right now. Having those over 100 degree days is brutal. It makes you feel like you're just sluggish, and very fatigued. Although, I've dealt with hot weather, but it was a dry heat... and it didn't bother me AS much...
I feel like I sweat really quick when it comes to the heat, then for some reason, along with the fatigue, the muscle spasticity kicks in, and sometimes numbness. It's not every time it's extremely hot outside. It just depends on what kind of activity i'm partaking in, during those extreme temps.
