This is my first post to this forum. I am a 65 year old female with primary progressive MS. I opted to discontinue MS medications about a year ago after having to stop Tysabri due to increase blood levels. My Dr. suggested I try Mavenclad but I just didn't feel comfortable going that route given the possible side effects. The other options I was given was monthly steroids infusions. I just completed my 6th infusion of Solu-Medrol. I've not noticed any big changes other than better control of my bladder.
My question is how long is it safe to be on steroids? I've heard it isn't good to continue long term. My next Dr. visit isn't until February and I wonder if I should continue the infusions until then.
Appreciate hearing from someone who has experience with this course of action.