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Created a youtube video to show how Im dealing with my PPMS

Up the Hill Backwards video link ttps://youtu.be/hq8Q5bD2seI...

PPMS and Ocrevus

I had a late life diagnosis of PPMS and am surprised at the ferocity of its progression. I'm starting Ocrevus next week and am wondering if anyone would be willing...

ppms

diagnosed in 1994 at 50 yrs old. On MS meds for about 6-8 yrs. Dealt with recurring loss of balance until 2013. Had CCSVI procedure in 2013 which made a...

Frequency urinating

I kept a log and I recently went 24 times/day (5am-10pm). My urologist says it’s bc of the nerves in my bladder telling my brain that my bladder is full...

Seizures in ms

My husband has PPMS diagnosed in 2017. He has just had a seizure and I was wondering how common it is in MS....

Primary Progressive MS (PPMS) Forum

This forum is for those with PPMS, care partners or caregivers to those with PPMS, or anyone who wants to join the PPMS conversation and learn more. Please feel free...

bladder issues

Howdy. I've been coping with the delight and glory of PPMS (such a joy) and I'm wondering if anyone out there has struggled with random bladder urgency issues. Well, there's...

starting new MS drug

I was diagnosed 11 yrs. ago with MS and have been on copaxone. My doctor would like me to try Zeposia. I am nervous about using it since it has...

Difference in Early PPMS vs RRMS?

Howdy! I’m Sky, I’m 31 and I have known for ~2 years that I’ve got MS, my doctors finally caught up after 2 brain MRIs, 1 spine MRI, 4 CTs...

Progression of PPMS

I was diagnosed with PPMS three years ago. I’m 64 now. When it all started I could walk and now after three years I’m in a wheelchair. I can walk...

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