Created a youtube video to show how Im dealing with my PPMSUp the Hill Backwards video link ttps://youtu.be/hq8Q5bD2seI...reactionsrepliesSymptomsPPMSExercise
PPMS and OcrevusI had a late life diagnosis of PPMS and am surprised at the ferocity of its progression. I'm starting Ocrevus next week and am wondering if anyone would be willing...reactions10repliesPPMS
ppmsdiagnosed in 1994 at 50 yrs old. On MS meds for about 6-8 yrs. Dealt with recurring loss of balance until 2013. Had CCSVI procedure in 2013 which made a...reactions8repliesCopingExercisePPMS
Frequency urinatingI kept a log and I recently went 24 times/day (5am-10pm). My urologist says it’s bc of the nerves in my bladder telling my brain that my bladder is full...reactions11repliesPPMS
Seizures in msMy husband has PPMS diagnosed in 2017. He has just had a seizure and I was wondering how common it is in MS....reactions1replyPPMS
Primary Progressive MS (PPMS) ForumThis forum is for those with PPMS, care partners or caregivers to those with PPMS, or anyone who wants to join the PPMS conversation and learn more. Please feel free...reactions49repliesPPMS
bladder issuesHowdy. I've been coping with the delight and glory of PPMS (such a joy) and I'm wondering if anyone out there has struggled with random bladder urgency issues. Well, there's...reactions15repliesPPMSSymptoms
starting new MS drugI was diagnosed 11 yrs. ago with MS and have been on copaxone. My doctor would like me to try Zeposia. I am nervous about using it since it has...reactions3repliesPPMSSide EffectsTreatmentTips & Advice
Difference in Early PPMS vs RRMS? Howdy! I’m Sky, I’m 31 and I have known for ~2 years that I’ve got MS, my doctors finally caught up after 2 brain MRIs, 1 spine MRI, 4 CTs...reactions1replyNewly DiagnosedPPMS
Progression of PPMSI was diagnosed with PPMS three years ago. I’m 64 now. When it all started I could walk and now after three years I’m in a wheelchair. I can walk...reactions6repliesPPMS