Anemia on Tysabri
Hi, I'm 27 and I have MS for ~3 years now.
I was on Rebif first, but it was not good for me (had attacks 2 times) and 1,5 year ago I've started to take Tysabri.
And it was really great.No side effects, no allergy - nothing.
But in October I was diagnosed with an anemia (Hb62), I had blood transfusions already 2 times but it keeps falling.
We stopped treatment with Tysabri of course (but it still in my body, like for 2 months) and hope it'll be better soon.
Did anyone have smth like this? Because my doctors are really confused as I see...
I have heard of it (from a research paper I read in passing for something else) but it does not seem common, at all. Here's the one case I saw:
https://n.neurology.org/content/anemia-and-natalizumab
But I also read that Anemia is more common in people with MS:
https://www.karger.com/Article/Abstract/381212
Hopefully your doctors are doing their due diligence and investigating all potential causes. Best of luck! 🍀🤞Ah, I found a couple more:
https://ejnpn.springeropen.com/articles/10.1186/s41983-019-0143-2
https://pubmed.ncbi.nlm.nih.gov/22438058/Also found an ECTRIMS presentation on anemia:
https://onlinelibrary.ectrims-congress.eu/ectrims/2013/copenhagen/34058/diana.ferraro.severe.anaemia.in.a.patient.with.multiple.sclerosis.treated.with.html
Not sure if all of these are of the same type of anemia (there are different types), so it does happen despite being rare, some are considered drug toxicity reactions.
Best of luck they figure it out and get it under control. 🍀🤞
