Ask Me Anything Live: With Devin Garlit, Moyna John, and Matt Allen
*THIS GIVEAWAY HAS ENDED. THANK YOU TO EVERYONE WHO PARTICIPATED*
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*Updated at 5:00pm EST 9/8/2022*
Thank you for participating in our Ask Us Anything!
This thread will now be locked, but we will select the winner of the Koldtec cooling therapy bundle giveaway soon!!
We hope you enjoyed this time speaking with Moyna, Matt, and Devin! Thanks everyone!!
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*Updated at 3:55pm EST 9/8/2022*
Hey MS community! Thank you so much for asking your questions and participating in our AMA with Matt, Devin, and Moyna! From 4-5pm, we will be trying to respond to as many answers as possible.
Just a friendly reminder, Moyna, Matt, and Devin *cannot* give any medical advice.
To see new replies and updates, please refresh this page and the newest replies and comments should appear.
One last reminder, those that post a question are automatically entered for a chance to win a 4 piece cooling therapy bundle generously donated by the amazing folks over at https://www.koldtec.com/.
The Ask Us Anything will promptly end at 5pm EST and the forum will be closed.
Thanks everyone!!
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You've read their amazing articles, you've connected with them through the comments, and now here's your chance to chat with them live!
In this forum thread, three of our MS advocates, Devin Garlit, Moyna John, and Matt Allen G, will answer questions from the MS community - LIVE - on Thursday, September 8th from 4pm-5pm est.
What questions about living and managing MS do you have for Moyna, Matt, and Devin?
Can't make the live but still want to participate? No problem! Submit your questions for Matt, Moyna, and Devin in advance!
BONUS - Anyone who submits a question anytime between Monday, August 29th, 2022 at 9 am est and Thursday, September 8th by 5pm est is automatically entered into our Koldtec Cooling Gear Giveaway. Winner to be selected on Friday, September 9th, and notified via email.
Moyna, Matt, and Devin will respond to your questions during the AMA on Thursday, September 8th from 4pm-5pm est.
Thanks so much for the cooling advice! I live blessed to live in Alaska so suffer less but this May n June we’re crazy hot here too. I do have a cooling vest and neck gaiter I use when I exercise but any tool is appreciated. Keep in movin’. Paula
I am glad you can use fans but to me it's the same as air conditioning. Hugs 
At first I was thinking, "Alaska = that cold snowy place up north" but then I remembered seeing Alaska on the news during the pandemic because it was so hot up there someone caught a moose (I think it was a moose) walking through their sprinklers! So I think that alone is evidence enough that things might be getting a tad hot "up in that cold snowy place"
Devon, It seems you are writing to me. Lol I can really understand all you write about. My question is, do you know if it's normal for the cold and heat both to bother us? The cold cold days make me hurt. The heat is now bothering me more. I'm bed ridden right now cuz I can barely walk. The pain is awful as well. I feel useless. Doesn't help that my heat pump isn't working. Thank you for all of you! Blessings. I've definitely talked to many people who say "too cold" is just as bad as "too hot" for them. 
Thank you,
! I know many people with MS who suffer from both heat and cold. I tend to really have trouble with swings in temperatures, regardless of whether it's hot or cold. Trying to maintain a constant temp can be so difficult, especially with the way the weather has been around the world these days. Best of luck to you!
This is so true! I live in Oklahoma & it has been a brutal summer. I simply took the trash out to the dumpster and then had to stay in and rest for a couple of hours. The summer was brutal but so is MS!! Can't seem to get a handle on this disease!! Aghhh!
My heart goes out to you,
. I experienced the heat and humidity of Oklahoma for three weeks as a kid and it was unbearable. I hope the weather breaks soon and that you begin to feel better again. Being stuck inside for a whole season must really get you down. Gentle hugs. - Lori (Team Member)
I live in central Texas, and I have developed cold urticaria (allergic reaction to cold) and I turn red when the gemperature dips below 50 degrees, and I break out in hives if it's below 40. It's miserable and I hate it. Likewise, I have trouble breathing when it's too hot. Above 100 degrees is brutal for me. I spend a lot of time every year indoors so I've picked up a few hobbbies that a wheelchair-bound person can do, all involving artistic ventures.
Thank you all for the articles you write. I find them very informative and helpful.
. Hey, I back tracked up the line a short bit to copy the link and piece of comment from Lori (team member):
Here is a link to a program through the Multiple Sclerosis Association of America that provides cooling vests free of charge: https://mymsaa.org/msaa-help/cooling-products/
I hope this helps.
Mommy HeatherOh man, I've never heard of urticaria, that sounds horrible! Especially when the opposite of cold messes you up too! You can't win!.. Do cooling and heating products help at all?
