Fatigue and MS
How would you describe your MS fatigue?
How has it impacted your life?
Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.
normally my fatigue is somewhat manageable with the help of meds but recently I came back from a trip and the jet lag (7 hour difference) combined with the MS had me bedridden for 10 days. It felt like my body was encased in cement! Has this happened to you and what steps do you take when traveling to avoid this double whammy? I have had some days like that. I question if it is MS fatigue or just fatigue from my night owl schedule.
I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this “fatigue”with regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.
The diagnosis of MS is new for me (February 2😎. My husband is very quiet, keeps his thoughts to himself. So, it's challenging to know what he's thinking. The word "tired" isn't enough to explain it. A few years ago I went through depression and I felt very isolated. Ki ND of like now. I don't even have the energy to try to explain to him how completely drained I feel. I know nutrition, sleep, are important, but I feel too tired doing the basics, loke emptying the dishwasher.
I don't know if I'm trying to ask something here or if I am just ventingour community is a safe place to do both- ask questions and vent. I can hear how overwhelming all of this is for you. Do you have a friend or other family member that can help you around the house? Jill (Team Member)
Extremely
Your Dad was right I learned the same lesson by taking care of myom when I could hardly take care of of myself. Remember his words they are powerful and it will make you stronger.
I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....
I fully understand your plight. I felt alone with this ms. The major support is from the forum and ms support groups. Friends and family don't get it. It makes us feel like we are aliens and speaking backwards. The only ones that get it is people living with ms. I became disabled 2005, then forced into early retirement 2009. You must know that people see us from their perspective and this disease doesn't look like what feel like on the inside.ttyl we moved from California to Texas to be close to our kids (their idea). Now they are 1 hour away, so we don’t see them as much as we’d hoped. It’s just me n my husband (2dogs & a cat) here. We both work but my job isn’t working with other people, consequently I am here alone! All my friends are out of state. I haven’t been able to really make any friends. You know the kind you can talk to, play cards with, go shopping, watch a movie with. I just do all that by myself.
