Fatigue and MS
How would you describe your MS fatigue?
How has it impacted your life?
Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.
I 100% relate. 
in the last few weeks thatâs how Iâve been feeling- kind of not feeling like doing anything except for watching TV and checking my email. But I canât say that was always my biggest symptom. I think things just changed for me last birthday when I turned 77. I also have had diagnosed atrial fib. I had an episode about 16 or 17 years ago, but nothing was really done about it and I had no real problems until last year when I had a bigger episode of a-fib and I am now on medications for it. I found out 20 years ago that I had MS but I canât say the fatigue was a big problem for me. I didnât know I had any problems until the day I woke up with transverse myelitis. I was on DMT for 12 years and now Iâm not taking anything for the past six years. I donât feel any different and I think some of my tiredness is due to age maybe and boredom maybe. Iâll see what my neurologist says when my appointment comes up next week.
I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this âfatigueâwith regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.
, I hear you about using Amazon or Walmart. I know fast delivery can be such a gift for people that aren't able to get out as much. We all find ways to "shop our values" when possible. None of us can do it all, so please don't feel too guilty about shopping from the retailer that best meets your needs at this time.
Best, Erin, Team Member.iâm starting to feel the same way as you. I donât feel like shopping anymore. I buy things online mostly Amazon and it gets delivered. Since my cataract surgery last year, I havenât felt like driving either. So my husband drives me around when heâs able to and I pretty much stay home. Once in a while, I get out Dr. short trips, but I have to push myself to do it.
Extremely
Your Dad was right I learned the same lesson by taking care of myom when I could hardly take care of of myself. Remember his words they are powerful and it will make you stronger.
I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....
I have the same issues! I live with my daughter and her family! They just don't understand, nor are they interested in learning! Sometimes, I am so exhausted that I fall asleep in my chair while I am on my computer, I don't sleep well at night because that's when my legs and neuropathy go nuts and have a field day! I keep telling my daughter that "I am 65, and have MS, of course I am always exhausted!" She just doesn't get it! She thinks I should get out and be just as active as she is, but that's impossible for me! I wish she would at least try to understand, I am now looking for other living arrangements, because I have no support! Not to mention, my sensory overload has gone haywire because of all the noise from the kids! unfortunately I too suffer from family members who donât understand or want to learn about MS. This attitude has changed the way I feel about them. If someone truly cared they will ask, therefore I choose to distance myself from self absorbing people
