Fatigue and MS
How would you describe your MS fatigue?
How has it impacted your life?
Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.
in the last few weeks thatâs how Iâve been feeling- kind of not feeling like doing anything except for watching TV and checking my email. But I canât say that was always my biggest symptom. I think things just changed for me last birthday when I turned 77. I also have had diagnosed atrial fib. I had an episode about 16 or 17 years ago, but nothing was really done about it and I had no real problems until last year when I had a bigger episode of a-fib and I am now on medications for it. I found out 20 years ago that I had MS but I canât say the fatigue was a big problem for me. I didnât know I had any problems until the day I woke up with transverse myelitis. I was on DMT for 12 years and now Iâm not taking anything for the past six years. I donât feel any different and I think some of my tiredness is due to age maybe and boredom maybe. Iâll see what my neurologist says when my appointment comes up next week. I couldn't agree with you more! Despite getting enough rest, eating clean, drinking a ton of water, and not exerting myself, I have no energy to do anything. It is all I can do to get out of bed every day.
I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this âfatigueâwith regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.
, I'm with you. It's not fatigue so much as extreme lethargy, where even if I'm thirsty and there's a glass of water 10 feet away, I just can't bring myself to make the effort to get it. That sounds really tough, especially when youâre doing all the right things and still things still aren't getting better. MS hits everyone differently, so just try to be patient with yourself. Youâre definitely not going through it alone because we get it here and we're right with you 𧥠Be encouraged, Latoya (Team Member)
Extremely
Your Dad was right I learned the same lesson by taking care of myom when I could hardly take care of of myself. Remember his words they are powerful and it will make you stronger.
I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....
I have the same issues! I live with my daughter and her family! They just don't understand, nor are they interested in learning! Sometimes, I am so exhausted that I fall asleep in my chair while I am on my computer, I don't sleep well at night because that's when my legs and neuropathy go nuts and have a field day! I keep telling my daughter that "I am 65, and have MS, of course I am always exhausted!" She just doesn't get it! She thinks I should get out and be just as active as she is, but that's impossible for me! I wish she would at least try to understand, I am now looking for other living arrangements, because I have no support! Not to mention, my sensory overload has gone haywire because of all the noise from the kids! unfortunately I too suffer from family members who donât understand or want to learn about MS. This attitude has changed the way I feel about them. If someone truly cared they will ask, therefore I choose to distance myself from self absorbing people
