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Fatigue and MS

How would you describe your MS fatigue?

How has it impacted your life?

  1. Fatigue has changed everything in my life. Many days I feel like I accomplish absolutely nothing because my body just can't move.

    1. As someone who was always described as having endless energy for so many years, I'm here to say it is horrifically depressing that MS fatigue had taken so much away from me. I go to bed at night thinking about all of the things I want to do the next day, things that really need doing and yet when I get up in the morning, I'm lucky if I can manage to wash a dish or empty some rubbish. My house is a pig stye, cluttered, dusty and I'm overwhelmed and disgusted most days. This is not the person I was for more than five decades. The term "used to" is a regular part of my speech. I used to spend a month or more on Spring cleaning and everything looked so nice. I was a perfectionist. I used to spend 8 hours or more outdoors raking in the Fall without even noticing how long I'd been outside. I used to feel good, energetic, strong, almost.......indestructible.

    2. . my heart goes out to you. MS doesn't seem satisfied sometimes with affecting one's physical health. It seems to want to consume so much more of a person's life and that just plain stinks. I am sorry. I wish I could just come over and clean your house for you, but I think that's not allowed 😉 . Also, that's kind of creepy of me, so apologies.

      Your home is still YOUR home and it keeps you safe and warm, even if it doesn't look the way you would like it to.

      Please continue to have grace and patience with yourself. Your spirit is still indestructible, even if your body isn't.

      Gentle Hugs, Erin, Team Member.

  2. I wish there was a different word for MS fatigue. It is a sickness well beyond tiredness or even malaise or flu like feeling. For me it is increasing as time goes on. I have had MS 15 yrs. and could fight this “fatigue”with regular exercise, diet, sleep, meds etc. But as I weaken it now consumes me.

    1. I describe it as I feel like I’ve hiked 5 mountains all at once when all I might have done is go to the store or done laundry

    2. I truly understand. I was diagnosed with MS 42 years ago. Fatigue is ugly and it has gotten much worse for me in the last 10 years or so. It has changed my life, my surroundings, my outlook on life dramatically. I have no one to help me so I just keep my dad's words in my head when I'm feeling my worse, "I don't want to hear you say 'you can't....', you HAVE TO keep trying!!"

  3. Extremely

    1. I feel tired all the time. I only work 3 days a week now and my days off I do nothing cause I'm sore and tired from work. I do a little housework, might take a nap in the afternoon and cook tea and that's me day done. I don't sleep well which doesn't help....

      1. I'm tired all the time and can't work! It consumes me as well ! Ugh!

      2. yes, the fact that many people with MS don't sleep well certainly doesn't make this situation any easier! - Alene, moderator

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