Spasms were violent, out of control, way too much benzo, life was miserable. Sept 2014 the Intrathecal Baclofen Pump was implanted with a very low initial dose. After 4 1/2 years the ideal window of effectiveness was achieved at about 1400 mcg. At 1500 mcg control was good with few break through spasms. Nov 2020 the pump was replaced due to system failure (and in-
creased spasm frequency).
This month I was diagnosed with Myoclonus; thusly, increase in Baclofen is anticipated along with oral Keppra at next refill. Spasms can be difficult to manage and very taxing not to mention quite expensive.
The pump was a life saver for me permitting normal social interactions after years of the jerky jerks. For a brief time also used a cell phone device to deliver extra meds when needed.
Intrathecal Baclofen Therapy, once the dose is established, is effective and user friendly at larger doses. Finding the best dose to combat spas-
ticity will take time and patience - it is part of the discovery of healing.