Has anyone resorted to getting the Baclofen pump inserted to help stop spasticity?
September 21, 2020
I need to know if anyone had to resort to getting the Baclofen pump inserted after the pills, many other strong meds, and botox gave you no relief?? And did it finally help stop the spasticity??
September 23, 2020
Hi @Stephanieb616. While you are waiting for responses from the community, I thought I would share with you this article from our editorial team about the Baclofen pump: https://multiplesclerosis.net/treatment/baclofen/. If you do decide to get it, I hope it brings you relief. Best wishes! - Lori (Team Member)
February 15, 2021
Spasms were violent, out of control, way too much benzo, life was miserable. Sept 2014 the Intrathecal Baclofen Pump was implanted with a very low initial dose. After 4 1/2 years the ideal window of effectiveness was achieved at about 1400 mcg. At 1500 mcg control was good with few break through spasms. Nov 2020 the pump was replaced due to system failure (and in-
creased spasm frequency).
This month I was diagnosed with Myoclonus; thusly, increase in Baclofen is anticipated along with oral Keppra at next refill. Spasms can be difficult to manage and very taxing not to mention quite expensive.
The pump was a life saver for me permitting normal social interactions after years of the jerky jerks. For a brief time also used a cell phone device to deliver extra meds when needed.
Intrathecal Baclofen Therapy, once the dose is established, is effective and user friendly at larger doses. Finding the best dose to combat spas-
ticity will take time and patience - it is part of the discovery of healing.