Bladder or Bowel Dysfunction
Share your experience with bladder or bowel dysfunction. Get the conversation started.
I can't tell when I need to urinate. I put myself on a bathroom schedule. I have not had any accidents, but am wondering if this is a common problem.
Hi
,
Thanks for reaching out.
I apologize for the confusion, I was responding topost (above).
I personally have not had Botox, howevermentions it has been "life-changing" for her.
Hopefully she will get a chance to chime in here as well.
My best, Doreen (Team Member)I have exactly the same problem.
Skymom, it sure is! I have trouble urinating when I can feel my bladder is full. I used to have urgency, but I take Vesicare for that. It's good that you go on a regular schedule, our doctors say we need to void 4-7 times a day to prevent bladder infections. You're not alone 😀
Kim, moderator
Helo, my problem is the other way, I will get diarrhea out of a blue so I started using depends when we travel it is a BIT LESS embarrassing 😀 Oh wow, I had that problem before losing 40 pounds! I hope you can find something that works with depends that works better. Hugs, Kim, moderator
I have bladder urgency and sometimes do not make it to the toilet in time. I work full time and teach classes for adults. This is very embarrassing when I have to make an excuse, practically run from the room and then return in different clothes. I take medication but it does not work very well anymore and I know that most of the drugs can cause "brain fog". Does anyone know of, or has anyone tried anything that works well?
I had the same problem as you, and it it got to the point where I never made it to the bathroom in time. I just had to wear pads all the time, which got very old, as you can imagine. Finally, after doing some research, I learned about botox injections, and sought out a urologist who offered that treatment. It's beyond me why doctors don't just tell us that this is an option. Furthermore, when you read advice articles on MS sites, they almost never mention it either. I've been getting this treatment twice a year for seven years now, and it has been 100% effective for me. What do I mean by 100%? I never have accidents. I can go on long road trips without making everyone stop all time. I can sit through long movies, concerts, and shows without having to interrupt the experience (sometimes not even go at intermission and stand in a long line!) This treatment is the ONLY one that is actually effective with addressing any of my MS symptoms!
Please note: this doesn't work for everyone. I am very lucky that it does for me, and should you choose to pursue it, I truly hope that it does for you as well. I did notice your age--I'm 69, so I'd say that it's not a factor.
, I am really glad you shared your experience with Botox injections with and this community! I have no idea why this treatment option isn't discussed more openly and offered as an option for people dealing with incontinence issues related to MS. It's a realy mystery and, frankly, kinda annoying.
I am glad the injections have been working so well for you and I hope you continue to see such positive results for many, many years to come!
Best, Erin, Team member.
Hi
! I am sorry you are dealing with this issue. Our contributors have written articles on this topic. Many of the suggestions include medication, but some of the non-medical tips might be something to try! https://multiplesclerosis.net/symptoms/urinary-incontinence-frequency-retention-bladder-dysfunction/ I hope this helps a little. You are not alone in this. Wishing you a good afternoon, Erin (MultipleSclerosis.net Team Member).
