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Bladder or Bowel Dysfunction

Share your experience with bladder or bowel dysfunction. Get the conversation started.

  1. I can't tell when I need to urinate. I put myself on a bathroom schedule. I have not had any accidents, but am wondering if this is a common problem.

    1. I started having less bladder contro;, and I;m NOT AWARE of the fukk bladder until its too late. Abour 19 years ago I was standing in a grocery line. I looked up, and saw the ladies room sign, and I was SHOT. I peed on the floor in line, and when I finished checkout moments latrer, I no longer needed the ladies room!! I changed my neuro. All I've read about female urinary issues in MS was BOTOX! Every 6 months! YES, down there!
      My Neuro asked if I'm like to try a drug. Heck yeah! So now I'm on Tolteridine.
      IT HAS CHANGED MY LIFE!!! I can drink a couple of cups of coffee and NOT pee the chairs at Church, Or lose control like ALWAYS happens after coffee! ALSO, I was having nights where I wet the bed. My Doc gave me the option to take another dose. I usually start to slow down on liquids, but last night I drank too much of tea, and felt like I DIDN'T wanna do LAUNDRY in the morning!

    2. We appreciate you sharing your story.
      It's great to hear Botox has made a difference for you.
      ~Doreen (Team Member)

  2. Skymom, it sure is! I have trouble urinating when I can feel my bladder is full. I used to have urgency, but I take Vesicare for that. It's good that you go on a regular schedule, our doctors say we need to void 4-7 times a day to prevent bladder infections. You're not alone 😀

    Kim, moderator

    1. Thank you for your additional thoughts. I wonder, though, that big pharma might yet find a way to capitalize on this eventually. They are awfully savvy when it comes to gaining market share for so many other therapies. Ain't capitalism fascinating, lol? Kim, moderator

    2. ha! They would capitalise on it but it's been done for years! 40 years for our centre, there are over 60 centres in the uk. All offering oxygen therapy, many of these are charity run.....Pharma are interested in the Millions, not the thousands.!

  3. I have bladder urgency and sometimes do not make it to the toilet in time. I work full time and teach classes for adults. This is very embarrassing when I have to make an excuse, practically run from the room and then return in different clothes. I take medication but it does not work very well anymore and I know that most of the drugs can cause "brain fog". Does anyone know of, or has anyone tried anything that works well?

    1. Hi Arlene, Thank you for your time moderating this site!
      The app is called 'Toilet Finder' It uses your GPS and fings the nearest toilet! If you're in a big store liie Home Depot, it finds where you need to go, realy fast!

    2. This is incredible!
      Thanks so much for sharing.
      ~Doreen (Team Member)

  4. Hi bahunt! I am sorry you are dealing with this issue. Our contributors have written articles on this topic. Many of the suggestions include medication, but some of the non-medical tips might be something to try! I hope this helps a little. You are not alone in this. Wishing you a good afternoon, Erin ( Team Member).

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