Vision Problems
Share your experience with vision problems. Get the conversation started.
I have not been able to see out of my right eye for a couple years now. My left eye sees 20/20 my right eye was 20/80 last time it was checked and that eye was almost completley color blind. I have tried multiple rounds of IV steroids but nothing has helped. In fact I am pretty sure it is getting worse again. Now my right eye is so blurry I can just barely make out rough shapes with it I am hoping that someone will look at this forum that has had success with something other than IV steroids at solving a similar problem to this and will tell me so I can talk to my Doc about it. I am scareed I will be completely blind or that there is no better with this eye and it is permanent
I just recently suffered from optic neuritis. It is a terrifying symptom of MS. Most of the time steroids are needed to relieve the nerve. I started on new nerve pain meds that luckily relieved this symptom. I just recently wrote an article that answers your question.
You might find it useful:
https://mshazybrain.com/recognize-optic-neuritis-and-ms/
Let me know if it helps!
All the best,
Mshazybrainonth
I am so sorry you are going through this. My story began with right eye optic neuritis and I lost complete vision in it over 2 days. The pain was intense with movement but some sight did return within 3-4 months with a high dose steroid that began intravenously and was tapered down to oral pills for a few weeks/months. My right eye lost depth perception and most color. That was in 1989 and I feared losing sight in my left eye too which was 20/20 until I needed age-related glasses when I turned 64 two years ago. There is good hope that you will enjoy many years with the small impairment xx
Hi Nick. I also have vision problem's. My right eye also. Last round of steroids did nothing. Eye exam showed nothing wrong with eye and 20/30 vision. Eye Dr.feels it is brain related. Duh. Neurologist says it is vascular. Sent me for Labs and get another MRI on Wednesday. I can't even describe what my eye does. I feel lost all the time. Feel like I am a space cadet. Better if in a dark room. I am able to use medical cannabis which makes me not notice my vision i issue. Very very frustrating. I have been told it will not go to the other eye. But who really knows. Best wishes to you.
I don't know if this will give you hope or not but I have gotten used to the problem. My other eye has compensated and so it is a minor problem. It is frustrating and I can almost always see some of the blur but it does not stop me from living. Hopefully your problem will settle down and go away. I hope your doctors are right and it won't go to the other eye but I have been lied to so many times that I have little trust in doctors, really they are wrong a lot not try to lie to me but still. I really hope you find something that helps. If you do let me know and I will do the same, good luck
Hello, after reading your reply I feel like you may have adapted to your problems and have just gotten used to your symptoms!! If so, I myself have tons of symptoms that I acknowledge at first and then just adapt to. Vision is a challenge, I have given up on Doctors, I have so many crazy symptoms in my head that they can’t explain them all!!! I wish you the best!!
I’m new to Ms, just diagnosed in August, but think i have had it for years. Been diagnosed with belles palsy about 5 times due to facial numbness. Finally went to see Neurologist when i started having tingling, burning sensation down and difficultly moving my left leg. after a battery of test finally dx with MS. Several months ago i noticed, esp when i’m tired, i get a very bright semicircle in my peripheral vision field. it is so bright and has triangles around the edges with a prisim effect (reminds me of a reses peanut butter cup wrapper). when it starts i loose my peripheral vision. I can’t tell which eye it is because even when i close my eyes it is there. usually after a few minutes of lying in the dark with my eyes closed it will go away. It usually on lasts about 30 minutes, but have been noticing a more increase in blurred vision. My MRI did not show any brain lesions either.
Yes, I realize your post was 13 years ago, but… I’ve never seen someone exactly describe what I had! Which was the “bright semicircle in my peripheral vision field”. Also I had the sensation of looking at the underside of a cone (like a traffic cone). My eye doctor had me go to my primary for a blood test to check for diabetes - negative. I was recently dx’d with MS after 40 years of symptoms. Yes, it’s so frustrating. I feel like many neurologists just don’t give a crap and think you’re just trying to score opiates. , hasn't been active in this community for quite some time, but I do hope they see your comment and pop back in here. While I wish neither of you had vision issues, I am glad you found someone dealing with a similar problem as you. I know it's nice to feel a little less alone in this.
I am so sorry you dealt with MS symptoms for FORTY YEARS before getting a proper diagnosis! That may be a new record for this community. I do hope you are getting proper treatment now, despite the doctors and neurologists that think you are seeking pain meds.
Best, Erin, Team Member.
