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Chin numbness and lesion on frontal lobe

Hi there,

I suppose you can add me to the long list of folks who think they may have MS. It's a big maybe, but here's my story.

I'm a 27 year old female-to-male individual. Five years ago I was hit with a debilitating treatment-resistant depression and severe fatigue out of the blue. I was sleeping 36 hours at a time. I also began to have sharp headaches in one spot on the front right, and this continued daily.

Eventually I had an MRI and was diagnosed with what they thought was a 1.5 cm telangiectasia/vascular lesion in that spot.

The depression has continued. I failed 20 drugs and had TMS, ECT, and ketamine.

6 months ago I began having intermittent numbness in my left chin, just below my lower lip. I wrote this off as psychosomatic, but it has become almost constant now.

I also began to experience some numbness in my left pec area and down my left arm into my pinky and ring finger.

Today I've had a mild squeezing tightness all around my upper chest.

The chin numbness is what I'm most curious about, because my lesion is nowhere near the motor or sensory areas of the brain, and is not thought to be a cause of any symptoms.

I will meet with a neurologist to re-scan the brain lesion. But I wonder if anyone's MS lesions were initially diagnosed as vascular.

Thanks much,

  1. Hi Matt,

    Thank you so much for reaching out. I'm so sorry to hear all that you've been through these past five years, and I understand it must be so frustrating to still not have a diagnosis or clear answers to explain these symptoms. While we cannot provide medical advice for your own safety, numbness in the face and limbs can be one of the most common MS symptoms. You can read more about this here: and I hope you get some answers soon. Please keep us posted on how you're doing and feel free to reach out anytime.

    Warmest wishes and happy New Year!
    - Shelby, Team Member

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