Extremely painful hip pain, shin bones feel like they are on fir
Recently with cold weather, spasticity has taken a toll on my entire body.
My hips are in extreme pain, my right arm , elbow (Osteoarthritis) losing so much strength, ear infections nonstop, ..so weak, feel like any day im going to lose ability to walk.
On top of all this found a strange lump, rib bone under left breast. I am worried, scared, and also have lost 30 lbs.
I've had MS now for 17 years, my Neurologist at the VA is awesome, I've been on Ocrevus for over 5 years, because I have PPMS.
Thank goodness no new lesions, but pain is insufferable, never goes away, no matter what ❗ I feel like I am losing my mind, my body is shutting down and so confused about whats happening to me, is this normal??
Hi,
!
First off, apologies for the delayed response. Secondly, I wish I had some great answer for you, but I just don't. I have to admit that I am a little concerned about your lump and weight loss and I do hope you are following up with your doctor about those issues, just to be safe. Many lumps are no big deal, but it's always a good idea to get them checked out, just to be sure.
And, while some of your symptoms could be related to your MS (the hip pain and such), some of them may be caused by a different issue. Also, the recurring ear infections may be a sign that your immune system is just not at its best (which could be due to the Ocrevus). On that note, Ocrevus does come with some pretty hefty potential side effects and even if you never experienced them before, they can pop up out of the blue-- https://multiplesclerosis.net/treatment/ocrevus-how-well-works-side-effects. I don't blame you for being pretty scared by your new symptoms. So, if you haven't done so already, please talk to your doctor about them. It may turn out that even though Ocrevus is helping with your lesions, your body is just not responding well to it at this point. And, it may turn out that some other condition is causing your symptoms. And, while it can be hard to get a handle on the pain, uncovering what might be causing it may offer some possible treatment avenues for you and your doctor.
Please, keep pushing your doctor for answers and keep us posted on how things are going, okay?
Best, Erin, Team Member.Erin,
You are truly best honestly, I couldn't ask for a better support person than you. You always respond to me, always relay great advice!! Im so thankful for you, still waiting to see when I can get an appointment with VA for this.
Happy Holidays and New Year's I will keep you updated!!
