How do you feel about using technology to help manage health? Take our survey here.
caret icon Back to all discussions

Fainting

I'm 50 years old and was diagnosed 20 years ago with MS. Last night I was making supper for my family and all the sudden my head started spinning and I was going to pass out. Luckily my son was close by he got a chair so I didn't fall on the floor and I was having a hard time breathing. I've never had this symptom before.

  1. Hi that must have been so scary for you! I am glad your son was there to help you. What does your doctor think was the cause of this? Jill (Team Member)

    1. He had me check my blood sugar at the lab. The test like when you're pregnant and have to drink that stuff. Test came back regular A1C. I just had an MRI. Waiting on results. He thought maybe anxiety. He said some times MS affects the part of the brain that controls heart rates etc. So no good answer.

    2. I remember that blood sugar test from when I was pregnant. Please keep us posted on your MRI results. Sending you strength. Jill (Team Member)

  2. I have fainted a few times. It comes after moments of extreme activity after already being fatigued for me. It happened quite a few times when I was first diagnosed. And then I did t do it again till 4 years later.

    1. Hi. That’s so disorienting! Glad you weren’t alone!

      And yes, it’s happened to me, too.
      I’ve had a few spates of fainting spells over the years. They come in clumps; once I fainted 4 or 5 times over a period of a couple of weeks, but didn’t faint again for several years. I fainted in the shower a couple of times (and have since renovated with a shower bench and multiple grab bars). But the most common way I fainted was when getting up in the night to go to the bathroom or respond to my kids’ cries. Twice I woke up on the floor as if I’d been sleeping there, and I had no recollection of going down (so it must’ve been really quick)!


      My neurologist didn’t think it was MS-related, and instead suggested heart work ups including an overnight holter study. Thankfully my heart was fine. But the specialists decided I have a form of circulatory disregulation. Apparently my blood pressure sometimes dips without warning. That makes sense, as I’ve had trouble since my teen years (I’m now 5😎 with getting grey outs when I stand up too fast (this is where your vision goes black, and it sounds like you’re underwater, but you are awake). And although I’ve always loved roller coasters, it was just a few years after my MS was diagnosed that I began blacking out if I went upside down in a roller coaster. (My doc at the time said it was just that my “elevator switch“ didn’t work.)


      The “treatment” for the circular dysregulation was simply to drink more water, and to increase my salt intake a bit. And to be honest, I haven’t really fainted much since doing that (but I have gained to weight post-menopause, lol).


      And although my neurologist still thinks it’s unlikely that this has anything to do with MS, I really do wonder. Certainly the brain controls circulation and so it would make sense that if it’s not regulating properly, that could be a problem caused by brain lesions.


      I also think it could be related to the recurring vertigo that I get. This is thought to be more likely related to MS, as people with MS apparently get vertigo more than the general population.


      Anyway, I hope that helps and isn’t too much information. Good luck with finding out what’s going on with you, and hopefully it won’t happen again!


      Please read our rules before posting.